IKNL Profiles > Life after the diagnosis of non-Hodgkin lymphoma 2004
Publisher
IKNL Profiles study
Creator
Floortje Mols, Lonneke van de Poll - Franse
Created
Dec 13 2011
Description
The questionnaire focuses on health and health complaints related to non-Hodgkin lymphoma, use of care and satisfaction with care.
URL to resource
Panel
iknl
Begin date
Nov 01 2004
| Name | English | Dutch |
|---|---|---|
| intro1 | Life after cancer Questionnaire about quality of life, use of care, and satisfaction with care, for people who have been treated for non-… | |
| 02q01 | What is currently your marital status? | |
| 02q02 | Do you currentely have a steady partner? | |
| 02q03 | Do you have children? | |
| 02q04 | Do you live in the same house with your child(ren)? | |
| 02q05 | Did cancer affect the relationship with your (former) partner? | |
| 02q06 | Indicate below which is your highest education level. | |
| 06q01-06q10 | We are interested in your current work situation. Will you please check the answer that best applies to you? It is possible to give more th… | |
| 06q11-06q18 | Which changes have you experienced in your work situation due to cancer? | |
| 06q19 | Did you have trouble getting (additional) health insurance, because of cancer? | |
| 06q20 | Did you have trouble getting life insurance, because of cancer? | |
| 06q21 | Did you have trouble getting mortgage, because of cancer? | |
| 05q01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| 05q02 | How many times did you have contact with your specialist in the past 12 months? | |
| 05q03 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q04 | Do you still have follow up appointments? | |
| 05q05 | What do you or did you, in general, think about the follow up appointments? | |
| 05q06 | Did you have a need for care after the treatment of your illness? | |
| 05q07 | Did you receive care after the treatment of your illness? | |
| 05q08 | Psychologist | |
| 05q09 | Sexologist | |
| 05q10 | Social worker | |
| 05q11 | Pastoral care | |
| 05q12 | General practitioner | |
| 05q13 | Dietist | |
| 05q14 | Physiotherapist | |
| 05q15 | Recovery program | |
| 05q16 | Creative therapy | |
| 05q17 | Oncological nurse | |
| 05q18 | Peer group | |
| 05q19 | How was the aftercare of your illness in general? | |
| 05q20 | What do you think, in general, of the health care that you received from the moment you were diagnosed with cancer up to today? | |
| 32q01 | Do you currently suffer much from your illness? | |
| 07q01-07q13 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 07q14 | Do you use medication for the disease(s) that you have indicated in the previous question? | |
| intro2 | Instruction: The following questions are about your views regarding your health. In this manner we are able to record how you feel and how … | |
| 19q01 | In general, would you say your health is | |
| 19q02 | Compared to one year ago, how would you rate your health in general now? | |
| 19q03-19q12 | The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so, how … | |
| 19q13-19q16 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your ph… | |
| 19q17-19q19 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emo… | |
| 19q20 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with f… | |
| 19q21 | How much physical pain have you had during the past 4 weeks? | |
| 19q22 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| 19q23-19q31 | These questions are about how you feel and how things have been with you during the past 4 weeks. For each question, please give the one an… | |
| 19q32 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like v… | |
| 19q33-19q36 | How true or false is each of the following statements for you? | |
| 33q01-33q45 | Directions: We are interested in knowing how your experience of having cancer affects your Quality of Life. Please answer all of the follow… | |
| 27q01 | Do you use the internet? | |
| 27v02 | How often do you use the internet? | |
| 27v03-27v07 | Do you use the internet for: (circle one number on each line) | |
| 27q08 | Do you use the internet with regard to information about cancer and the consequences of cancer? | |
| 27q09-27q12 | Maintaining e-mail (or digital) contact with: (circle one number on each line) | |
| 27q13-27q25 | Do you think that it is important that information can be found on the internet about: (circle one number on each line) | |
| 27q26-27q38 | We also would like to know if you have searched for information on the internet about the following subjects and if you have found the info… | |
| intro 3 | Instruction sticker test With this test we want to determine what the diagnosis cancer, which you received in the past, means to you. The t… | |
| 34s01 | Size of the chosen sticker |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| nhl04a01pat_id | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Patiënt identifier | |
| Nhl04a01gend | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Gender | |
| nhl04a01timediag | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Time passed since diagnosis | |
| nhl04a01catageques | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Age category at time of study | |
| nhl04a01catincage | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Age category at time of diagnosis | |
| nhl04a01stage | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Stage of disease | |
| nhl04a01grade | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Grade of tumor | |
| nhl04a01response | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Response | |
| nhl04a01morf | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Morfology of the tumor | |
| nhl04a01syst | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Systemic therapy | |
| nhl04a01surg | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Surgical treatment | |
| nhl04a01radioth | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Radiotherapy | |
| nhl04a01ther_oth | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Other therapy | |
| nhl04a01ther_no | Life after the diagnosis of non-Hodgkin lymphoma 2004 | No therapy | |
| nhl04a01unknown | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Treatment unknown | |
| nhl04a01comb | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Combination of treatments | |
| nhl04a01ses | Life after the diagnosis of non-Hodgkin lymphoma 2004 | SES value (Social Economic Status) | |
| nhl04a02q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What is currently your marital status? | |
| nhl04a02q02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you currentely have a steady partner? | |
| nhl04a02q03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have children? | |
| nhl04a02q04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you live in the same house with your child(ren)? | |
| nhl04a02q05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did cancer affect the relationship with your (former) partner? | |
| nhl04a02q06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Indicate below which is your highest education level | |
| nhl04a06q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I have no job | |
| nhl04a06q02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am looking for a job | |
| nhl04a06q03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am a student | |
| nhl04a06q04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am a housewife/man | |
| nhl04a06q05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am disabled | |
| nhl04a06q06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am retired | |
| nhl04a06q07 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I work 1-16 hours a week | |
| nhl04a06q08 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I work 17-32 hours a week | |
| nhl04a06q09 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I work 33-40 hours a week | |
| nhl04a06q10 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I work more than 40 hours a week | |
| nhl04a06q11 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Nothing has changed | |
| nhl04a06q12 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I have been retrained due to cancer | |
| nhl04a06q13 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I have quit working due to cancer | |
| nhl04a06q14 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am working more hours due to cancer | |
| nhl04a06q15 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am working less hours due to cancer | |
| nhl04a06q16 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am disabled due to cancer | |
| nhl04a06q17 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I have retired early | |
| nhl04a06q18 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I have been fired due to cancer | |
| nhl04a06q19 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| nhl04a06q20 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have experienced problems with getting life insurance, because of cancer? | |
| nhl04a06q21 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you have experienced problems with getting mortgage, because of cancer? | |
| nhl04a05q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How many times did you have contact with your general practitioner in the past 12 months? | |
| nhl04a05q02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How many times did you have contact with your specialist in the past 12 months? | |
| nhl04a05q03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| nhl04a05q04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you still have follow up appointments? | |
| nhl04a05q05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What do you or did you, in general, think about the follow up appointments? | |
| nhl04a05q06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you have a need for care after the treatment of your illness? | |
| nhl04a05q07 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you receive care after the treatment of your illness? | |
| nhl04a05q08 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Psychologist | |
| nhl04a05q09 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Sexologist | |
| nhl04a05q10 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Social worker | |
| nhl04a05q11 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Pastoral care | |
| nhl04a05q12 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | General practitioner | |
| nhl04a05q13 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Dietist | |
| nhl04a05q14 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Physiotherapist | |
| nhl04a05q15 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Recovery and Balance | |
| nhl04a05q16 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Creative therapy | |
| nhl04a05q17 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Oncological nurse | |
| nhl04a05q18 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Peer group | |
| nhl04a05q19 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How was the aftercare of your illness in general? | |
| nhl04a05q20 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What do you think, in general, of the healtcare that you reveived from the moment you were diagnosed with cancer up to today? | |
| nhl04a32q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you currently suffer much from your illness? | |
| nhl04a07q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: asthma, chronic bronchitis, COPD | |
| nhl04a07q02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Heart condition | |
| nhl04a07q03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: High blood pressure | |
| nhl04a07q04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Stroke | |
| nhl04a07q05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Kidney disease | |
| nhl04a07q06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Diabetes | |
| nhl04a07q07 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Malignancies | |
| nhl04a07q08 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Arthritis | |
| nhl04a07q09 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Skin condition | |
| nhl04a07q10 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Liver disease | |
| nhl04a07q11 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Thyroid disease | |
| nhl04a07q12 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you have, or did you have in the past 12 months: Other condition | |
| nhl04a07q13 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I don’t have any of these diseases / conditions | |
| nhl04a07q14 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you use medication for the disease(s) that you have indicated in the previous question? | |
| nhl04a19q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | In general, would you say your health is | |
| nhl04a19q02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Compared to one year ago, how would you rate your health in general now? | |
| nhl04a19q03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Vigorous activities, such as running, lifting heavy objects, participating in | |
| nhl04a19q04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Moderate activities, such as moving a table, pushing a vacuum cleaner, swimming | |
| nhl04a19q05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Lifting or carrying groceries | |
| nhl04a19q06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Climbing several flights of stairs | |
| nhl04a19q07 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Climbing one flight of stairs | |
| nhl04a19q08 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Bending, kneeling or stooping | |
| nhl04a19q09 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Walking more than a mile | |
| nhl04a19q10 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Walking several blocks | |
| nhl04a19q11 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Walking one block | |
| nhl04a19q12 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Bathing or dressing yourself | |
| nhl04a19q13 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Cut down on the amount of time you spent on work or other activites | |
| nhl04a19q14 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Accomplished less than you would like | |
| nhl04a19q15 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Were limited in the kind of work or other activities | |
| nhl04a19q16 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Had difficulty performing the work or other activities (for example, it took extra effort) | |
| nhl04a19q17 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Cut down the amount of time you spent on work or other activities | |
| nhl04a19q18 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Accomplished less than you would like | |
| nhl04a19q19 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Didn’t do work or other activities as carefully as usual | |
| nhl04a19q20 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with family, friends, neighbors or groups? | |
| nhl04a19q21 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much physical pain have you had during the past 4 weeks? | |
| nhl04a19q22 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| nhl04a19q23 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you feel full of pep? | |
| nhl04a19q24 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Have you been a very nervous person? | |
| nhl04a19q25 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Have you felt so down in the dumps that nothing could cheer you up? | |
| nhl04a19q26 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Have you felt calm and peaceful? | |
| nhl04a19q27 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you have a lot of energy? | |
| nhl04a19q28 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Have you felt downhearted and blue? | |
| nhl04a19q29 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you feel worn out? | |
| nhl04a19q30 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Have you been a happy person? | |
| nhl04a19q31 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Did you feel tired? | |
| nhl04a19q32 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)? | |
| nhl04a19q33 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I seem to get sick a little easier than other people | |
| nhl04a19q34 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I am as healthy as anybody I know | |
| nhl04a19q35 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | I expect my health to get worse | |
| nhl04a19q36 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | My health is excellent | |
| nhl04a19s01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | General health scale | |
| nhl04a19s02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Physical functioning scale | |
| nhl04a19s03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Role functioning – physical scale | |
| nhl04a19s04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Bodily pain scale | |
| nhl04a19s05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Vitality / Fatigue scale | |
| nhl04a19s06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Social functioning scale | |
| nhl04a19s07 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Role functioning - emotional scale | |
| nhl04a19s08 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Mental health / well being scale | |
| nhl04a19s09 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Physical component summary scale | |
| nhl04a19s10 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Mental component summary scale | |
| nhl04a33q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Fatigue | |
| nhl04a33q02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Appetite changes | |
| nhl04a33q03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Aches or pain | |
| nhl04a33q04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Sleep changes | |
| nhl04a33q05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Constipation | |
| nhl04a33q06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Nausea | |
| nhl04a33q07 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Menstruation | |
| nhl04a33q08 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Neuropathy | |
| nhl04a33q09 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Rate your overall physical health | |
| nhl04a33q10 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How difficult is it for you to cope today as a result of your disease and treatment? | |
| nhl04a33q11 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How good is your quality of life? | |
| nhl04a33q12 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much happiness do you feel? | |
| nhl04a33q13 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you feel like you are in control of things in your life? | |
| nhl04a33q14 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How satisfying is your life? | |
| nhl04a33q15 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How is your present ability to concentrate or to remember things? | |
| nhl04a33q16 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How useful do you feel? | |
| nhl04a33q17 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Has your illness or treatment caused changes in your appearance? | |
| nhl04a33q18 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Has your illness or treatment caused changes in your self concept (the way you see yourself)? | |
| nhl04a33q19 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Initial diagnosis | |
| nhl04a33q20 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Cancer treatments (i.e. chemotherapy, radiation, or surgery) | |
| nhl04a33q21 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Time since my treatment was completed | |
| nhl04a33q22 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much anxiety do you have? | |
| nhl04a33q23 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much depression do you have? | |
| nhl04a33q24 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Future diagnostic tests | |
| nhl04a33q25 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | A second cancer | |
| nhl04a33q26 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Recurrence or spreading (metastatis) of your cancer | |
| nhl04a33q27 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Dying | |
| nhl04a33q28 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How distressing has illness been for your family? | |
| nhl04a33q29 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Is the amount of support you receive from others sufficient to meet your needs? | |
| nhl04a33q30 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Is your continuing health care interfering with your personal relationships? | |
| nhl04a33q31 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Is your sexuality impacted by your illness? | |
| nhl04a33q32 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | To what extent do you have worries about your fertility? | |
| nhl04a33q33 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | To what degree has your illness and treatment interfered with your employment? | |
| nhl04a33q34 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | To what degree has your illness and treatment interfered with your activities at home? | |
| nhl04a33q35 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much isolation do you feel is caused by your illness or treatment? | |
| nhl04a33q36 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much financial burden have you incurred as a result of your illness and treatment? | |
| nhl04a33q37 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | To what extent do you have worries about family members getting cancer? | |
| nhl04a33q38 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How important to you is your participation in religious activities such as praying, going to church? | |
| nhl04a33q39 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How important to you are other spiritual activities such as meditation? | |
| nhl04a33q40 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much has your spiritual life changed as a result of cancer diagnosis? | |
| nhl04a33q41 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How much uncertainty do you feel about your future? | |
| nhl04a33q42 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | To what extent has your illness made positive changes in your life? | |
| nhl04a33q43 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you sense a purpose/mission for your life or a reason for being alive? | |
| nhl04a33q44 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How hopeful do you feel? | |
| nhl04a27q37 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Consequences for my partner | |
| nhl04a27q38 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Consequences for my children | |
| nhl04a34q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Size of the chosen sticker | |
| nhl04a34s01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Distance in millimeters from the center of the sticker to the center of the yellow circle | |
| nhl04a33q45 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | To what extent have you been bothered by “survival guilt� (that is, you felt guilty because you survived and others have not) | |
| nhl04a33s01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Physical well-being scale | |
| nhl04a33s02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Psychological well-being scale | |
| nhl04a33s03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Social well-being scale | |
| nhl04a33s04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Spiritual well-being scale | |
| nhl04a33s05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Quality of life total scale | |
| nhl04a27q01 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you use the internet? | |
| nhl04a27q02 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | How often do you use the internet? | |
| nhl04a27q03 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Sending and receiving e-mail | |
| nhl04a27q04 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Searching for information | |
| nhl04a27q05 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Participating in chat groups | |
| nhl04a27q06 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Asking questions to experts | |
| nhl04a27q07 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Participating in user groups | |
| nhl04a27q08 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Do you use the internet with regard to information about cancer and the consequences of cancer? | |
| nhl04a27q09 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Your doctor | |
| nhl04a27q10 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | An internet doctor | |
| nhl04a27q11 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Peers | |
| nhl04a27q12 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Members of a discussion group | |
| nhl04a27q13 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Cancer | |
| nhl04a27q14 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Possible treatments | |
| nhl04a27q15 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Possible alternative therapies | |
| nhl04a27q16 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Where to find a good doctor | |
| nhl04a27q17 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What the best hospital is | |
| nhl04a27q18 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What patient groups have to offer | |
| nhl04a27q19 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Which activities there are in the region for patients | |
| nhl04a27q20 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Which trials/studies there are | |
| nhl04a27q21 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Treatment guidelines | |
| nhl04a27q22 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Peer groups | |
| nhl04a27q23 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What you can do yourself | |
| nhl04a27q24 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Consequences for my partner | |
| nhl04a27q25 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Consequences for my children | |
| nhl04a27q26 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Cancer | |
| nhl04a27q27 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Possible treatments | |
| nhl04a27q28 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Possible alternative therapies | |
| nhl04a27q29 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Where to find a good doctor | |
| nhl04a27q30 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What the best hospital is | |
| nhl04a27q31 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What patient groups have to offer | |
| nhl04a27q32 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Which activities there are in the region for patients | |
| nhl04a27q33 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Which trials/studies there are | |
| nhl04a27q34 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Treatment guidelines | |
| nhl04a27q35 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | Peer groups | |
| nhl04a27q36 | Life after the diagnosis of non-Hodgkin lymphoma 2004 | What you can do yourself |