IKNL Profiles > Life after the diagnosis of melanoma 2008
Publisher
IKNL Profiles study
Creator
Lonneke van de Poll - Franse
Created
Feb 29 2012
Description
In 2008 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with melanoma.
URL to resource
Panel
iknl
Begin date
Feb 01 2008
| Name | English | Dutch |
|---|---|---|
| Intro | Questionnaire about quality of life, use of care, and satisfaction with care, for people who have been treated for non-Hodgkin lymphoma 5 t… | |
| 02q01 - 02q06 | Where do your grandparents come from? | |
| 02q07 | What is currently your marital status? | |
| 02q08 | Do you currently have a steady partner? | |
| 02q09 | Do you have children? | |
| 02q10 | Do you live in the same house with your child(ren)? | |
| 02q11 | Indicate below which is your highest education level. | |
| 06q01- 06q10 | We are interested in your current work situation. Will you please check the box with the answer that best applies to you? It is possible to… | |
| 06q11 | Which changes have you experienced in your work situation due to cancer? | |
| 06q12 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| 06q13 | Have you experienced problems with getting life insurance, because of cancer? | |
| 06q14 | Have you experienced problems with getting disability insurance, because of cancer? | |
| 06q15 | Have you experienced problems with getting mortgage, because of cancer? | |
| Intro2 | Instruction: The following questions are about your views regarding your health. In this manner we are able to record how you feel and how … | |
| 19q01 | In general, would you say your health is | |
| 19q02 | Compared to one year ago, how would you rate your health in general now? | |
| 19q03 - 19q12 | The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so, how … | |
| 19q13 - 19q16 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your ph… | |
| 19q17 - 19q19 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emo… | |
| 19q20 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with f… | |
| 19q21 | How much bodily pain have you had during the past 4 weeks? | |
| 19q22 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| 19q23 - 19q31 | These questions are about how you feel and how things have been with you during the past 4 weeks. For each question, please give the one an… | |
| 19q32 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like v… | |
| 19q33 - 19q36 | How true or false is each of the following statements for you? | |
| 07q01 - 07q12 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| Intro 3 | We would like to know how cancer affects your life. Please answer the following questions. Choose the answer that best applies to you. Ther… | |
| 25q01- 25q40 | Choose the answer that best applies to you in the following questions. | |
| 21q01-21q14 | Below are a number of statements that people often use to describe themselves. Please read each statement and then circle the appropriate n… | |
| 40q01 | Is melanoma a disease that runs in your family? | |
| 40q02-40q06 | ||
| 40q07 - 40q09 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you do the following activities/affairs in de … | |
| 40q10 - 40q12 | In comparison to the period of time before the diagnoses of your melanoma, how fearful are you now for the effects of the sun: | |
| 40q13 - 40q15 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you now protect your skin from the sun by: | |
| 35q16 | When do you apply sunscreen? | |
| 40q17 | How often do you then apply sunscreen? | |
| 40q18 | What factor sunscreen do you use? | |
| 05q01 | Who diagnosed your melanoma? | |
| 05q02 | Who removed your melanoma? | |
| 05q03 - 05q06 | ||
| 05q07 | Do you still have follow up appointments for your melanoma? | |
| 05q08-05q12 | With which doctor do you still have or did you have follow up appointments? | |
| 05q13 - 05q15 | During these follow up appointments, how often: | |
| 05q16 | After you were diagnosed with melanoma, how many non-malignant birthmarks were preventatively (precautionary) removed? | |
| 05q17 | Did you discuss with your dermatologist how often you have to come back from this moment on? | |
| 05q18 | Do you feel comfortable with this follow up scheme? | |
| 05q19 | In general, how do or did you feel about the follow up appointments? | |
| 05q20 - 05q29 | If you have had extra care after the treatment of your melanoma, who did you get it from? | |
| 05q30 | Did you want extra care after the treatment of your melanoma? | |
| 05q31 | In general, how do you feel about the health care you received from the moment you were diagnosed with melanoma until today? | |
| Intro 4 | To improve healthcare, we would like to know what information you received about the various aspects of your illness and its treatment. Ple… | |
| 26q01 - 26q20 | During your current disease or treatment, how much information have you received on: | |
| 26q21 | Have you received written information? | |
| 26q22 | Have you received information on CD or tape / video? | |
| 26q23 | Were you satisfied with the amount of information you received? | |
| 26q24 | Do you wish to receive more information? | |
| 26q25 | Do you wish that you had received less information? | |
| 26q26 | Overall has the information you have received been helpful? | |
| 26q27 | Do you use the internet? | |
| 26q28 | Did you use the internet to find information about melanoma? |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| ml08a01pat_id | Life after the diagnosis of melanoma 2008 | Study number | |
| ml08a01response | Life after the diagnosis of melanoma 2008 | Response status | |
| ml08a01gend | Life after the diagnosis of melanoma 2008 | Gender | |
| ml08a01ageques | Life after the diagnosis of melanoma 2008 | Age category at time of questionnaire (February 2008) | |
| ml08a01ageinc | Life after the diagnosis of melanoma 2008 | Age category at time of diagnosis | |
| ml08a01timediag | Life after the diagnosis of melanoma 2008 | Time passed since diagnosis | |
| ml08a01ses | Life after the diagnosis of melanoma 2008 | Social Economic Status in 3(4) categories | |
| ml08a01syst | Life after the diagnosis of melanoma 2008 | Systemic therapy | |
| ml08a01chemo | Life after the diagnosis of melanoma 2008 | Chemotherapy | |
| ml08a01horm | Life after the diagnosis of melanoma 2008 | Hormonal therapy | |
| ml08a01immuno | Life after the diagnosis of melanoma 2008 | Immunotherapy | |
| ml08a01surg | Life after the diagnosis of melanoma 2008 | Surgery | |
| ml08a01radioth | Life after the diagnosis of melanoma 2008 | Radiotherapy | |
| ml08a01breslow | Life after the diagnosis of melanoma 2008 | Breslow stage | |
| ml08a01stage | Life after the diagnosis of melanoma 2008 | Stage | |
| ml08a02q01 | Life after the diagnosis of melanoma 2008 | Do your grandparents come from The Netherlands? | |
| ml08a02q02 | Life after the diagnosis of melanoma 2008 | Do your grandparents come from another European country? | |
| ml08a02q03 | Life after the diagnosis of melanoma 2008 | Do your grandparents come from Asia? | |
| ml08a02q04 | Life after the diagnosis of melanoma 2008 | Do your grandparents come from North Africa? | |
| ml08a02q05 | Life after the diagnosis of melanoma 2008 | Do your grandparents come from Central / South Africa? | |
| ml08a02q06 | Life after the diagnosis of melanoma 2008 | Do your grandparents come from North / South America? | |
| ml08a02q07 | Life after the diagnosis of melanoma 2008 | What is currently your marital status? | |
| ml08a02q08 | Life after the diagnosis of melanoma 2008 | Do you currently have a steady partner? | |
| ml08a02q09 | Life after the diagnosis of melanoma 2008 | Do you have children? | |
| ml08a02q10 | Life after the diagnosis of melanoma 2008 | Do you live in the same house as your child(ren)? | |
| ml08a02q11 | Life after the diagnosis of melanoma 2008 | Indicate below which is your highest education level. | |
| ml08a06q01 | Life after the diagnosis of melanoma 2008 | I work 1 - 16 hours a week | |
| ml08a06q02 | Life after the diagnosis of melanoma 2008 | I work 17 - 32 hours a week | |
| ml08a06q03 | Life after the diagnosis of melanoma 2008 | I work 33 - 40 hours a week | |
| ml08a06q04 | Life after the diagnosis of melanoma 2008 | I work more than 40 hours a week | |
| ml08a06q05 | Life after the diagnosis of melanoma 2008 | I have no job | |
| ml08a06q06 | Life after the diagnosis of melanoma 2008 | I am looking for a job | |
| ml08a06q07 | Life after the diagnosis of melanoma 2008 | I am disabled | |
| ml08a06q08 | Life after the diagnosis of melanoma 2008 | I am retired | |
| ml08a06q09 | Life after the diagnosis of melanoma 2008 | I am a housewife / man | |
| ml08a06q10 | Life after the diagnosis of melanoma 2008 | I am a student | |
| ml08a06q11 | Life after the diagnosis of melanoma 2008 | Which changes have you experienced in your work situation due to cancer? | |
| ml08a06q12 | Life after the diagnosis of melanoma 2008 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| ml08a06q13 | Life after the diagnosis of melanoma 2008 | Have you experienced problems with getting life insurance, because of cancer? | |
| ml08a06q14 | Life after the diagnosis of melanoma 2008 | Have you experienced problems with getting disability insurance, because of cancer? | |
| ml08a06q15 | Life after the diagnosis of melanoma 2008 | Have you experienced problems with getting mortgage, because of cancer? | |
| ml08a19q01 | Life after the diagnosis of melanoma 2008 | In general, would you say your health is: | |
| ml08a19q02 | Life after the diagnosis of melanoma 2008 | Compared to one year ago, how would you rate your health in general now? | |
| ml08a19q03 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in vigorous activities, such as running, lifting heavy objects or participating in strenuous sports and if so, how much? | |
| ml08a19q04 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in moderate activities, such as moving a table, pushing a vacuum cleaner or swimming and if so, how much? | |
| ml08a19q05 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as lifting or carrying groceries and if so, how much? | |
| ml08a19q06 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as climbing several flights of stairs and if so, how much? | |
| ml08a19q07 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as climbing one flight of stairs and if so, how much? | |
| ml08a19q08 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as bending, kneeling or stooping and if so, how much? | |
| ml08a19q09 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as walking more than a mile and if so, how much? | |
| ml08a19q10 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as walking several blocks and if so, how much? | |
| ml08a19q11 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as walking one block and if so, how much? | |
| ml08a19q12 | Life after the diagnosis of melanoma 2008 | Does your health now limit you in activities, such as bathing or dressing yourself and if so, how much? | |
| ml08a19q13 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, did you cut down on the amount of time you spent on work or other activities as a result of your physical health? | |
| ml08a19q14 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, did you accomplish less than you would have liked to as a result of your physical health? | |
| ml08a19q15 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, were you limited in the kind of work or other activities as a result of your physical health? | |
| ml08a19q16 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, did you have difficulties performing the work or other activities as a result of your physical health? | |
| ml08a19q17 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, did you cut down on the amount of time you spent on work or other activities as a result of your emotional problems? | |
| ml08a19q18 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, did you accomplish less than you would have liked to as a result of your emotional problems? | |
| ml08a19q19 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, did you not do your work or other activities as carefully as usual as a result of your emotional problems? | |
| ml08a19q20 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal activities with family, friends, neighbours or groups? | |
| ml08a19q21 | Life after the diagnosis of melanoma 2008 | How much physical pain have you had during the past 4 weeks? | |
| ml08a19q22 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| ml08a19q23 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks did you feel full of pep? | |
| ml08a19q24 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks have you been a very nervous person? | |
| ml08a19q25 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks have you felt so down in the dumps that nothing could cheer you up? | |
| ml08a19q26 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks have you felt calm and peaceful? | |
| ml08a19q27 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks did you have a lot of energy? | |
| ml08a19q28 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks have you felt downhearted and blue? | |
| ml08a19q29 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks did you feel worn out? | |
| ml08a19q30 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks have you been a happy person? | |
| ml08a19q31 | Life after the diagnosis of melanoma 2008 | How much of the time during the past 4 weeks did you feel tired? | |
| ml08a19q32 | Life after the diagnosis of melanoma 2008 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)? | |
| ml08a19q33 | Life after the diagnosis of melanoma 2008 | I seem to get sick a little easier than other people | |
| ml08a19q34 | Life after the diagnosis of melanoma 2008 | I am as healthy as anybody I know | |
| ml08a19q35 | Life after the diagnosis of melanoma 2008 | I expect my health to get worse | |
| ml08a19q36 | Life after the diagnosis of melanoma 2008 | My health is excellent | |
| ml08a19s01 | Life after the diagnosis of melanoma 2008 | General health | |
| ml08a19s02 | Life after the diagnosis of melanoma 2008 | Physical function | |
| ml08a19s03 | Life after the diagnosis of melanoma 2008 | Role functioning - physical | |
| ml08a19s04 | Life after the diagnosis of melanoma 2008 | Bodily pain | |
| ml08a19s05 | Life after the diagnosis of melanoma 2008 | Vitality / fatigue | |
| ml08a19s06 | Life after the diagnosis of melanoma 2008 | Social functioning | |
| ml08a19s07 | Life after the diagnosis of melanoma 2008 | Role functioning - emotional | |
| ml08a19s08 | Life after the diagnosis of melanoma 2008 | Mental health / well being | |
| ml08a19s09 | Life after the diagnosis of melanoma 2008 | Physical component summary | |
| ml08a19s10 | Life after the diagnosis of melanoma 2008 | Mental component summary | |
| ml08a07q01 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: asthma, chronic bronchitis, COPD | |
| ml08a07q02 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: heart condition | |
| ml08a07q03 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: high blood pressure | |
| ml08a07q04 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: stroke | |
| ml08a07q05 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: kidney disease | |
| ml08a07q06 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: diabetes | |
| ml08a07q07 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: malignancies | |
| ml08a07q08 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: arthritis | |
| ml08a07q09 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: skin condition | |
| ml08a07q10 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: liver disease | |
| ml08a07q11 | Life after the diagnosis of melanoma 2008 | Do you have, or did you have in the past 12 months: thyroid disease | |
| ml08a07q12 | Life after the diagnosis of melanoma 2008 | You haven't had any of the above in the past 12 months. | |
| ml08a25q01 | Life after the diagnosis of melanoma 2008 | I learned something about life because of having had cancer | |
| ml08a25q02 | Life after the diagnosis of melanoma 2008 | Having had cancer makes me feel unsure about my future | |
| ml08a25q03 | Life after the diagnosis of melanoma 2008 | I worry about my future | |
| ml08a25q04 | Life after the diagnosis of melanoma 2008 | I am afraid to die | |
| ml08a25q05 | Life after the diagnosis of melanoma 2008 | I feel like time in my life is running out | |
| ml08a25q06 | Life after the diagnosis of melanoma 2008 | Having had cancer has made me realize that time is precious | |
| ml08a25q07 | Life after the diagnosis of melanoma 2008 | ving had cancer has strengthened my religious faith or my sense of spirituality | |
| ml08a25q08 | Life after the diagnosis of melanoma 2008 | I do not take my body for granted since the cancer | |
| ml08a25q09 | Life after the diagnosis of melanoma 2008 | Having had cancer has made me more concerned about my health | |
| ml08a25q10 | Life after the diagnosis of melanoma 2008 | I am more aware of physical problems or changes in my body since having had cancer | |
| ml08a25q11 | Life after the diagnosis of melanoma 2008 | I worry about my health | |
| ml08a25q12 | Life after the diagnosis of melanoma 2008 | I worry about the cancer coming back or about getting another cancer | |
| ml08a25q13 | Life after the diagnosis of melanoma 2008 | New symptoms (aches, pains, getting sick or the flu) make me worry about the cancer coming back | |
| ml08a25q14 | Life after the diagnosis of melanoma 2008 | I am concerned that my energy has not returned to what it was before I had cancer | |
| ml08a25q15 | Life after the diagnosis of melanoma 2008 | I am bothered that my body cannot do what it could before having had cancer | |
| ml08a25q16 | Life after the diagnosis of melanoma 2008 | I worry about how my body looks | |
| ml08a25q17 | Life after the diagnosis of melanoma 2008 | I feel disfigured | |
| ml08a25q18 | Life after the diagnosis of melanoma 2008 | I sometimes wear clothing to cover up parts of my body I don’t want others to see | |
| ml08a25q19 | Life after the diagnosis of melanoma 2008 | Having had cancer has made me take better care of myself (my health) | |
| ml08a25q20 | Life after the diagnosis of melanoma 2008 | Having to pay attention to my physical health interferes with my life | |
| ml08a25q21 | Life after the diagnosis of melanoma 2008 | I feel a sense of pride or accomplishment from surviving cancer | |
| ml08a25q22 | Life after the diagnosis of melanoma 2008 | I learned something about myself because of having had cancer | |
| ml08a25q23 | Life after the diagnosis of melanoma 2008 | I am angry about having had cancer | |
| ml08a25q24 | Life after the diagnosis of melanoma 2008 | I feel guilty for somehow being responsible for getting cancer | |
| ml08a25q25 | Life after the diagnosis of melanoma 2008 | I feel that I am a role model to other people with cancer | |
| ml08a25q26 | Life after the diagnosis of melanoma 2008 | Having had cancer has made me feel old | |
| ml08a25q27 | Life after the diagnosis of melanoma 2008 | I feel guilty today for not having been available to my family when I had cancer | |
| ml08a25q28 | Life after the diagnosis of melanoma 2008 | Having had cancer has been the most difficult experience in my life | |
| ml08a25q29 | Life after the diagnosis of melanoma 2008 | I wonder why I got cancer | |
| ml08a25q30 | Life after the diagnosis of melanoma 2008 | It is important for me to know why I got cancer | |
| ml08a25q31 | Life after the diagnosis of melanoma 2008 | Having had cancer turned into a reason to make changes in my life | |
| ml08a25q32 | Life after the diagnosis of melanoma 2008 | Because of cancer I have become better about expressing what I want | |
| ml08a25q33 | Life after the diagnosis of melanoma 2008 | Because of cancer I have more confidence in myself | |
| ml08a25q34 | Life after the diagnosis of melanoma 2008 | Having had cancer has given me direction in life | |
| ml08a25q35 | Life after the diagnosis of melanoma 2008 | I place a higher value on my relationships with family or friends than I did before having had cancer | |
| ml08a25q36 | Life after the diagnosis of melanoma 2008 | I feel a special bond with people with cancer | |
| ml08a25q37 | Life after the diagnosis of melanoma 2008 | Because I had cancer I am more understanding of what other people may feel when they are seriously ill | |
| ml08a25q38 | Life after the diagnosis of melanoma 2008 | Having had cancer has made me more willing to help others | |
| ml08a25q39 | Life after the diagnosis of melanoma 2008 | I feel that I should give something back to others because I survived cancer | |
| ml08a25q40 | Life after the diagnosis of melanoma 2008 | Having had cancer keeps me from doing activities I enjoy (examples: travel, socializing, recreation, time with family) | |
| ml08a25s01 | Life after the diagnosis of melanoma 2008 | IOC physical: health awareness | |
| ml08a25s02 | Life after the diagnosis of melanoma 2008 | IOC physical: body changes | |
| ml08a25s03 | Life after the diagnosis of melanoma 2008 | IOC psychological: positive self-evaluation | |
| ml08a25s04 | Life after the diagnosis of melanoma 2008 | IOC psychological: negative self-evaluation | |
| ml08a25s05 | Life after the diagnosis of melanoma 2008 | IOC existential: positive outlook | |
| ml08a25s06 | Life after the diagnosis of melanoma 2008 | IOC existential: negative outlook | |
| ml08a25s07 | Life after the diagnosis of melanoma 2008 | IOC social: life interferences | |
| ml08a25s08 | Life after the diagnosis of melanoma 2008 | IOC social: value of relationships | |
| ml08a25s09 | Life after the diagnosis of melanoma 2008 | IOC meaning of cancer | |
| ml08a25s10 | Life after the diagnosis of melanoma 2008 | IOC health worry | |
| ml08a25s11 | Life after the diagnosis of melanoma 2008 | IOC higher order positive scale | |
| ml08a25s12 | Life after the diagnosis of melanoma 2008 | IOC higher order negative scale | |
| ml08a21q01 | Life after the diagnosis of melanoma 2008 | I make contact easily when I meet people. | |
| ml08a21q02 | Life after the diagnosis of melanoma 2008 | I often make a fuss about unimportant things. | |
| ml08a21q03 | Life after the diagnosis of melanoma 2008 | I often talk to strangers. | |
| ml08a21q04 | Life after the diagnosis of melanoma 2008 | I often feel unhappy. | |
| ml08a21q05 | Life after the diagnosis of melanoma 2008 | I am often irritated. | |
| ml08a21q06 | Life after the diagnosis of melanoma 2008 | I often feel inhibited in social interactions. | |
| ml08a21q07 | Life after the diagnosis of melanoma 2008 | I take a gloomy view on things. | |
| ml08a21q08 | Life after the diagnosis of melanoma 2008 | I find it hard to start a conversation. | |
| ml08a21q09 | Life after the diagnosis of melanoma 2008 | I am often in a bad mood. | |
| ml08a21q10 | Life after the diagnosis of melanoma 2008 | I am a closed kind of person. | |
| ml08a21q11 | Life after the diagnosis of melanoma 2008 | I would rather keep other people at a distance. | |
| ml08a21q12 | Life after the diagnosis of melanoma 2008 | I often find myself worrying about something. | |
| ml08a21q13 | Life after the diagnosis of melanoma 2008 | I am often down in the dumps. | |
| ml08a21q14 | Life after the diagnosis of melanoma 2008 | When socializing, I don\'t find the right things to talk about. | |
| ml08a21s01 | Life after the diagnosis of melanoma 2008 | social inhibition | |
| ml08a21s02 | Life after the diagnosis of melanoma 2008 | negative affectivity | |
| ml08a21s03 | Life after the diagnosis of melanoma 2008 | type D personality | |
| ml08a40q01 | Life after the diagnosis of melanoma 2008 | Is melanoma a disease that runs in your family? | |
| ml08a40q02 | Life after the diagnosis of melanoma 2008 | Does your scar from the melanoma hurt? | |
| ml08a40q03 | Life after the diagnosis of melanoma 2008 | Does your scar from the melanoma itch? | |
| ml08a40q04 | Life after the diagnosis of melanoma 2008 | Do you have a numb feeling around your scar from the melanoma? | |
| ml08a40q05 | Life after the diagnosis of melanoma 2008 | Is there swelling around your scar from the melanoma? | |
| ml08a40q06 | Life after the diagnosis of melanoma 2008 | Is there swelling in your arm or leg due to the surgery? | |
| ml08a40q07 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you go on sun- and beach holidays? | |
| ml08a40q08 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you still do your profession of daily affairs in the sun? | |
| ml08a40q09 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you still do recreation outdoors in the sun? (Riding a bike, hiking, gardening, exercising) | |
| ml08a40q10 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, how fearful are you now for the effects of the sun on your own skin? | |
| ml08a40q11 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, how fearful are you now for the effects of the sun on your partners skin? (0 = if not applicable) | |
| ml08a40q12 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, how fearful are you now for the effects of the sun on your childrens skin? (0 = if not applicable) | |
| ml08a40q13 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you now protect your skin from the sun by staying in the shadow? | |
| ml08a40q14 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you now protect your skin from the sun by adjusting your clothes? (For example by wearing long sleeves, trouwers, caps and hats) | |
| ml08a40q15 | Life after the diagnosis of melanoma 2008 | In comparison to the period of time before the diagnoses of your melanoma, to what degree do you now protect your skin from the sun by applying sunscreen? | |
| ml08a40q16 | Life after the diagnosis of melanoma 2008 | When do you apply sunscreen? | |
| ml08a40q17 | Life after the diagnosis of melanoma 2008 | How often do you apply sunscreen? | |
| ml08a40q18 | Life after the diagnosis of melanoma 2008 | What factor sunscreen do you use? | |
| ml08a05q01 | Life after the diagnosis of melanoma 2008 | Who diagnosed your melanoma? | |
| ml08a05q02 | Life after the diagnosis of melanoma 2008 | Who removed your melanoma? | |
| ml08a05q03 | Life after the diagnosis of melanoma 2008 | How many times did you have contact with your general practitioner in the past 12 months? | |
| ml08a05q04 | Life after the diagnosis of melanoma 2008 | How many of these contact moments had to do with your melanoma or the aftermath of your melanoma? | |
| ml08a05q05 | Life after the diagnosis of melanoma 2008 | How many times did you have contact with your specialist in the past 12 months? | |
| ml08a05q06 | Life after the diagnosis of melanoma 2008 | How many of these contact moments had to do with your melanoma or the aftermath of your melanoma? | |
| ml08a05q07 | Life after the diagnosis of melanoma 2008 | Do you still have follow up appointments for your melanoma? | |
| ml08a05q08 | Life after the diagnosis of melanoma 2008 | Do you still have or did you have follow up appointments with your General Practitioner? | |
| ml08a05q09 | Life after the diagnosis of melanoma 2008 | Do you still have or did you have follow up appointments with a dermatologist (skin doctor)? | |
| ml08a05q10 | Life after the diagnosis of melanoma 2008 | Do you still have or did you have follow up appointments with a (plastic) surgeon? | |
| ml08a05q11 | Life after the diagnosis of melanoma 2008 | Do you still have or did you have follow up appointments with a internist or oncologist? | |
| ml08a05q12 | Life after the diagnosis of melanoma 2008 | Do you still have or did you have follow up appointments with someone else? | |
| ml08a05q13 | Life after the diagnosis of melanoma 2008 | During these follow up appointments, how often did you have to undress fully so that your whole body could be examined? | |
| ml08a05q14 | Life after the diagnosis of melanoma 2008 | During these follow up appointments how often was your scar of the melanoma examined? | |
| ml08a05q15 | Life after the diagnosis of melanoma 2008 | During these follow up appointments how often was there felt for nodes? | |
| ml08a05q16 | Life after the diagnosis of melanoma 2008 | After your were diagnosed with melanoma, how many non-malignant birthmarks were preventatively (precautionary) removed? | |
| ml08a05q17 | Life after the diagnosis of melanoma 2008 | Did you discuss with your dermatologist how often you have to come back from this moment on? | |
| ml08a05q18 | Life after the diagnosis of melanoma 2008 | Do you feel comfortable with this follow up scheme? | |
| ml08a05q19 | Life after the diagnosis of melanoma 2008 | In general, how do or did you feel about the follow up appointments? | |
| ml08a05q20 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from a psychologist? | |
| ml08a05q21 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from a social worker? | |
| ml08a05q22 | Life after the diagnosis of melanoma 2008 | Did you get extra pastoral care after the treatment of your melanoma? | |
| ml08a05q23 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from a General Practitioner? | |
| ml08a05q24 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from a physiotherapist? | |
| ml08a05q25 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from alternative or complementary therapy? | |
| ml08a05q26 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from an oncological nurse? | |
| ml08a05q27 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from a peer group? | |
| ml08a05q28 | Life after the diagnosis of melanoma 2008 | Did you get extra care after the treatment of your melanoma from a medical specialist (for example a dermatologist, internist, surgeon)? | |
| ml08a05q29 | Life after the diagnosis of melanoma 2008 | Did you want extra care after the treatment of your melanoma? | |
| ml08a05q30 | Life after the diagnosis of melanoma 2008 | In general, how did you feel about the health care you received from the moment you were diagnosed with melanoma until today? | |
| ml08a26q01 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the diagnoses of your disease? | |
| ml08a26q02 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the extent (spread) of your disease? | |
| ml08a26q03 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the possible causes of your disease? | |
| ml08a26q04 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on whether the disease is under control? | |
| ml08a26q05 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the purpose of any medical tests your have had or may under go? | |
| ml08a26q06 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the procedures of the medical tests? | |
| ml08a26q07 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the results of the medical tests you have already received? | |
| ml08a26q08 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the medical treatment (chemotherapy, radiotherapy, surgery or other treatment modality)? | |
| ml08a26q09 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the non-medical treatment (for example herbal therapy, hemeopathy, relaxation therapy)? | |
| ml08a26q10 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the expected benefit of the treatment? | |
| ml08a26q11 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the possible side-effects of your treatment? | |
| ml08a26q12 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the expected effects of the treatment on disease symptoms? | |
| ml08a26q13 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the effects of the treatment on social and family life? | |
| ml08a26q14 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on the effects of the treatment on sexual activity? | |
| ml08a26q15 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on additional help outside the hospital (e.g. help with daily activities, self help groups, district nurses)? | |
| ml08a26q16 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on rehabilitation services (e.g. physiotherapy, occupational therapy)? | |
| ml08a26q17 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on aspects of managing your illness at home? | |
| ml08a26q18 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on possible professional psychological support? | |
| ml08a26q19 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on different places of care (hospitals / outpatient services / home)? | |
| ml08a26q20 | Life after the diagnosis of melanoma 2008 | During your current disease or treatment, how much information have you received on things that you can do to help yourself get well (rest, contact with others..)? | |
| ml08a26q21 | Life after the diagnosis of melanoma 2008 | Have you received written information? | |
| ml08a26q22 | Life after the diagnosis of melanoma 2008 | Have you received information on CD or tape / video? | |
| ml08a26q23 | Life after the diagnosis of melanoma 2008 | Were you satisfied with the amount of information you received? | |
| ml08a26q24 | Life after the diagnosis of melanoma 2008 | Do you wish to receive more information? | |
| ml08a26q25 | Life after the diagnosis of melanoma 2008 | Do your wish that you had received less information? | |
| ml08a26q26 | Life after the diagnosis of melanoma 2008 | Overall had the information you have received been helpful? | |
| ml08a26q27 | Life after the diagnosis of melanoma 2008 | Do you use the internet? | |
| ml08a26q28 | Life after the diagnosis of melanoma 2008 | Did you use the internet to find information about melanoma? | |
| ml08a26s01 | Life after the diagnosis of melanoma 2008 | information about the disease | |
| ml08a26s02 | Life after the diagnosis of melanoma 2008 | information about medical tests | |
| ml08a26s03 | Life after the diagnosis of melanoma 2008 | information about treatments | |
| ml08a26s04 | Life after the diagnosis of melanoma 2008 | information about other services | |
| ml08a26s09 | Life after the diagnosis of melanoma 2008 | satisfaction with the information received | |
| ml08a26s12 | Life after the diagnosis of melanoma 2008 | overall the information has been helpful |