IKNL Profiles > Quality of life endometrial cancer 2008
Publisher
IKNL Profiles study
Creator
Lonneke van de Poll - Franse
Created
Jun 26 2012
Description
URL to resource
Panel
iknl
Begin date
May 01 2008
| Name | English | Dutch |
|---|---|---|
| intro1 | Please fill in the questionnaire by yourself, in your own pace. You can answer the questions by checking the box/number that applies best t… | |
| 02q01 | What is currently your marital status? | |
| 02q02 | What is the highest education level that you have completed? | |
| 06q01 | Do you have a paid job at this moment? | |
| 06q02 | Paid job hours/week | |
| 06q03 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| 05q01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| 05q02 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q03 | How many times did you have contact with your specialist in the past 12 months? | |
| 05q04 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q05 | Do you still have follow up appointments? | |
| 05q06 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| 05q07 | Do you feel comfortable with this follow up scheme? | |
| 05q08 | Did you receive care after the treatment of your illness? | |
| 05q09-05q19 | Received care from: | |
| 07q01-07q14 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 07q15–07q28 | Please indicate for each condition if you are treated for it or not. | |
| 07q29-07q42 | Please indicate for each condition whether it interferes with your activities or not. | |
| intro2 | These questions ask for your views about your health. This information will keep track of how you feel and how well you are able to do your… | |
| 19q01 | In general, would you say your health is | |
| 19q02 | Compared to one year ago, how would you rate your health in general now? | |
| 19q03-19q12 | The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so, how … | |
| 19q13-19q16 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your ph… | |
| 19q17-19q19 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emo… | |
| 19q20 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with f… | |
| 19q21 | How much bodily pain have you had during the past 4 weeks? | |
| 19q22 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| 19q23-19q31 | These questions are about how you feel and how things have been with you during the past 4 weeks. For each question, please give the one an… | |
| 19q32 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like v… | |
| 19q33-19q36 | How true or false is each of the following statements for you? | |
| intro3 | Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these… | |
| 13q01-13q31 | During the past week | |
| 13q32-13q33 | During the past 4 weeks | |
| 13q34-13q37 | During the past 4 weeks | |
| 21q01-21q14 | Below are a number of statements that people often use to describe themselves. Please read each statement and then circle the appropriate n… | |
| 22q01-22q08 | For the following questions, please circle the number that best corresponds to your views. | |
| 23q01-23q10 | The following questions ask you about how you normally feel. You can choose from five response categories, from ‘never’ to ‘always’… | |
| intro4 | The following questions are about how you feel right now. Please choose the answer that best describes your current feeling. Do not think t… | |
| 24q01 | I feel tense or ‘wound up’ | |
| 24q02 | I still enjoy the things I used to enjoy | |
| 24q03 | I get a sort of frightened feeling as if something awful is about to happen | |
| 24q04 | I can laugh and see the funny side of things | |
| 24q05 | Worrying thoughts go through my mind | |
| 24q06 | I feel cheerful | |
| 24q07 | I can sit at ease and feel relaxed | |
| 24q08 | I feel as if I am slowed down | |
| 24q09 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| 24q10 | I have lost interest in my appearance | |
| 24q11 | I feel restless, as if I have to be on the move | |
| 24q12 | I look forward with enjoyment to things | |
| 24q13 | I get sudden feelings of panic | |
| 24q14 | I can enjoy a good book or radio or TV program | |
| intro5 | We would like to know in which way cancer influences your life. Please answer the following questions. With every question, check the box t… | |
| 25q01-25q73 | ||
| 25q74-25q81 | The next questions are not applicable to all people. If this is the case for you, please circle ‘Not applicable’. | |
| intro6 | To improve healthcare, we would like to know what information you received about the various aspects of your illness and its treatment. Ple… | |
| 26q01-26q20 | During your current disease or treatment, how much information have you received on: | |
| 26q21 | Have you received written information? | |
| 26q22 | Have you received information on CD or tape / video? | |
| 26q23 | Were you satisfied with the amount of information you received? | |
| 26q24 | Were you satisfied with the amount of information you received? | |
| 26q25 | Do you wish that you had received less information? | |
| 26q26 | Overall has the information you have received been helpful? | |
| 27q01 | Do you use the internet? | |
| 27q02 | Did you use the internet to find information about endometrial cancer? |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| en08a01pat_id | Quality of life endometrial cancer 2008 | Patient identifier | |
| en08a01resp | Quality of life endometrial cancer 2008 | Responder | |
| en08a01catageques | Quality of life endometrial cancer 2008 | Age category at time of study | |
| en08a01catageinc | Quality of life endometrial cancer 2008 | Age category at time of diagnosis | |
| en08a01timediag | Quality of life endometrial cancer 2008 | Time passed since diagnosis | |
| en08a01treat | Quality of life endometrial cancer 2008 | Primary treatment | |
| en08a01stadkort | Quality of life endometrial cancer 2008 | Stage of disease | |
| en08a01grade | Quality of life endometrial cancer 2008 | Grade of tumor | |
| en08a01BMI | Quality of life endometrial cancer 2008 | Body Mass Index (BMI) | |
| en08a01t_ses3 | Quality of life endometrial cancer 2008 | Social Economic Status in 3(4) categories | |
| en08a02q01 | Quality of life endometrial cancer 2008 | What is currently your marital status? | |
| en08a02q02 | Quality of life endometrial cancer 2008 | What is the highest educationlevel that you have completed? | |
| en08a06q01 | Quality of life endometrial cancer 2008 | Do you have a paid job at this moment? | |
| en08a06q02 | Quality of life endometrial cancer 2008 | Paid job hours/week | |
| en08a06q03 | Quality of life endometrial cancer 2008 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| en08a05q01 | Quality of life endometrial cancer 2008 | How many times did you have contact with your general practitioner in the past 12 months? | |
| en08a05q02 | Quality of life endometrial cancer 2008 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| en08a05q03 | Quality of life endometrial cancer 2008 | How many times did you have contact with your specialist in the past 12 months? | |
| en08a05q04 | Quality of life endometrial cancer 2008 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| en08a05q05 | Quality of life endometrial cancer 2008 | Do you still have follow up appointments | |
| en08a05q06 | Quality of life endometrial cancer 2008 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| en08a05q07 | Quality of life endometrial cancer 2008 | Do you feel comfortable with this follow up scheme? | |
| en08a05q08 | Quality of life endometrial cancer 2008 | Did you receive care after the treatment of your illness? | |
| en08a05q09 | Quality of life endometrial cancer 2008 | Psychologist | |
| en08a05q10 | Quality of life endometrial cancer 2008 | Sexologist | |
| en08a05q11 | Quality of life endometrial cancer 2008 | Social worker | |
| en08a05q12 | Quality of life endometrial cancer 2008 | Pastoral care | |
| en08a05q13 | Quality of life endometrial cancer 2008 | General practitioner | |
| en08a05q14 | Quality of life endometrial cancer 2008 | Dietician | |
| en08a05q15 | Quality of life endometrial cancer 2008 | Physiotherapist | |
| en08a05q16 | Quality of life endometrial cancer 2008 | Recovery program | |
| en08a05q17 | Quality of life endometrial cancer 2008 | Creative therapy | |
| en08a05q18 | Quality of life endometrial cancer 2008 | Oncological nurse | |
| en08a05q19 | Quality of life endometrial cancer 2008 | Contact with other cancer survivors | |
| en08a07q01 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: heart condition | |
| en08a07q15 | Quality of life endometrial cancer 2008 | Are you being treated for: heart condition | |
| en08a07q29 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: heart condtion | |
| en08a07q02 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: stroke | |
| en08a07q16 | Quality of life endometrial cancer 2008 | Are you being treated for: stroke | |
| en08a07q30 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: stroke | |
| en08a07q03 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: high blood pressure | |
| en08a07q17 | Quality of life endometrial cancer 2008 | Are you being treated for: high blood pressure | |
| en08a07q31 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: high blood pressure | |
| en08a07q04 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: asthma, chronic bronchitis, COPD | |
| en08a07q18 | Quality of life endometrial cancer 2008 | Are you being treated for: asthma, chronic bronchitis, COPD | |
| en08a07q32 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: asthma, chronic bronchitis, COPD | |
| en08a07q05 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: diabetes | |
| en08a07q19 | Quality of life endometrial cancer 2008 | Are you being treated for: diabetes | |
| en08a07q33 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: diabetes | |
| en08a07q06 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: ulcer | |
| en08a07q20 | Quality of life endometrial cancer 2008 | Are you being treated for: ulcer | |
| en08a07q34 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: ulcer | |
| en08a07q07 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: kidney disease | |
| en08a07q21 | Quality of life endometrial cancer 2008 | Are you being treated for: kidney disease | |
| en08a07q35 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: kidney disease | |
| en08a07q08 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: liver disease | |
| en08a07q22 | Quality of life endometrial cancer 2008 | Are you being treated for: liver disease | |
| en08a07q36 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: liver disease | |
| en08a07q09 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: anemia or other blood condition | |
| en08a07q23 | Quality of life endometrial cancer 2008 | Are you being treated for: anemia or other blood condition | |
| en08a07q37 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: anemia or other blood condition | |
| en08a07q10 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: thyroid disease | |
| en08a07q24 | Quality of life endometrial cancer 2008 | Are you being treated for: thyroid disease | |
| en08a07q38 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: thyriod disease | |
| en08a07q11 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: depression | |
| en08a07q25 | Quality of life endometrial cancer 2008 | Are you being treated for: depression | |
| en08a07q39 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: depression | |
| en08a07q12 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: arthritis | |
| en08a07q26 | Quality of life endometrial cancer 2008 | Are you being treated for: arthritis | |
| en08a07q40 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: arthritis | |
| en08a07q13 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: backache | |
| en08a07q27 | Quality of life endometrial cancer 2008 | Are you being treated for: backache | |
| en08a07q41 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: backache | |
| en08a07q14 | Quality of life endometrial cancer 2008 | Do you have now, or did you have in the past 12 months: rheumatism | |
| en08a07q28 | Quality of life endometrial cancer 2008 | Are you being treated for: rheumatism | |
| en08a07q42 | Quality of life endometrial cancer 2008 | Does the condition interfere with your activities: rheumatism | |
| en08a19q01 | Quality of life endometrial cancer 2008 | In general, how would you say your health is | |
| en08a19q02 | Quality of life endometrial cancer 2008 | Compared to one year ago, how would you rate your health in general now? | |
| en08a19q03 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports | |
| en08a19q04 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Moderate activities, such as moving a table, pushing a vacuum cleaner, swimming | |
| en08a19q05 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Lifting or carrying groceries | |
| en08a19q06 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Climbing several flights of stairs | |
| en08a19q07 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Climbing one flight of stairs | |
| en08a19q08 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Bending, kneeling or stooping | |
| en08a19q09 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Walking more than a mile | |
| en08a19q10 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Walking several blocks | |
| en08a19q11 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Walking one block | |
| en08a19q12 | Quality of life endometrial cancer 2008 | Does your health now limit you in these activities: Bathing or dressing yourself | |
| en08a19q13 | Quality of life endometrial cancer 2008 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Cut down on the amount of time you spent on work or other activities | |
| en08a19q14 | Quality of life endometrial cancer 2008 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Accomplished less than you would like | |
| en08a19q15 | Quality of life endometrial cancer 2008 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Were limited in the kind of work or other activities | |
| en08a19q16 | Quality of life endometrial cancer 2008 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Had difficulty performing the work or other activities (for example, it took extra effort) | |
| en08a19q17 | Quality of life endometrial cancer 2008 | During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Cut down the amount of time you spent on work or other activities | |
| en08a19q18 | Quality of life endometrial cancer 2008 | During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Accomplished less than you would like | |
| en08a19q19 | Quality of life endometrial cancer 2008 | During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Didn’t do work or other activities as carefully as usual | |
| en08a19q20 | Quality of life endometrial cancer 2008 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with family, friends, neighbors or groups? | |
| en08a19q21 | Quality of life endometrial cancer 2008 | How much bodily pain have you had during the past 4 weeks? | |
| en08a19q22 | Quality of life endometrial cancer 2008 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| en08a19q23 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Did you feel full of pep? | |
| en08a19q24 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Have you been a very nervous person | |
| en08a19q25 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Have you felt so down in the dumps that nothing could cheer you up? | |
| en08a19q26 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Have you felt calm and peaceful | |
| en08a19q27 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Did you have a lot of energy? | |
| en08a19q28 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Have you felt downhearted and blue? | |
| en08a19q29 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Did you feel worn out? | |
| en08a19q30 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Have you been a happy person? | |
| en08a19q31 | Quality of life endometrial cancer 2008 | How much of the time during the past 4 weeks: Did you feel tired? | |
| en08a19q32 | Quality of life endometrial cancer 2008 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)? | |
| en08a19q33 | Quality of life endometrial cancer 2008 | How true or false is each of the following statements for you: I seem to get sick a little easier than other people | |
| en08a19q34 | Quality of life endometrial cancer 2008 | How true or false is each of the following statements for you: I am as healthy as anybody I know | |
| en08a19q35 | Quality of life endometrial cancer 2008 | How true or false is each of the following statements for you: I expect my health to get worse | |
| en08a19q36 | Quality of life endometrial cancer 2008 | How true or false is each of the following statements for you: My health is excellent | |
| en08a19s01 | Quality of life endometrial cancer 2008 | General health perceptions scale | |
| en08a19s02 | Quality of life endometrial cancer 2008 | Physical functioning scale | |
| en08a19s03 | Quality of life endometrial cancer 2008 | Role functioning - physical scale | |
| en08a19s04 | Quality of life endometrial cancer 2008 | Bodily pain scale | |
| en08a19s05 | Quality of life endometrial cancer 2008 | Vitality scale | |
| en08a19s06 | Quality of life endometrial cancer 2008 | Social functioning scale | |
| en08a19s07 | Quality of life endometrial cancer 2008 | Role functioning - emotional scale | |
| en08a19s08 | Quality of life endometrial cancer 2008 | Mental health scale | |
| en08a13q01 | Quality of life endometrial cancer 2008 | During the past week: Have you had swelling in one or both legs? | |
| en08a13q02 | Quality of life endometrial cancer 2008 | During the past week: Have you felt heaviness in one or both legs? | |
| en08a13q03 | Quality of life endometrial cancer 2008 | During the past week: Have you had pain in your lower back and/or pelvis? | |
| en08a13q04 | Quality of life endometrial cancer 2008 | Answer only if you had surgery: During the past week: Have you had pain in your scar? | |
| en08a13q05 | Quality of life endometrial cancer 2008 | During the past week: When you felt the urge to pass urine, did you have to hurry to get to the toilet? | |
| en08a13q06 | Quality of life endometrial cancer 2008 | During the past week: Have you passed urine frequently? | |
| en08a13q07 | Quality of life endometrial cancer 2008 | During the past week: Have you had difficulty emptying your bladder? | |
| en08a13q08 | Quality of life endometrial cancer 2008 | During the past week: Have you had leaking of urine? | |
| en08a13q09 | Quality of life endometrial cancer 2008 | During the past week: Have you been limited in your daily activities because of problems with urinating? | |
| en08a13q10 | Quality of life endometrial cancer 2008 | During the past week: Have you had pain or a burning feeling when passing urine? | |
| en08a13q11 | Quality of life endometrial cancer 2008 | During the past week: When you felt the urge to move your bowels, did you have to hurry to get to the toilet? | |
| en08a13q12 | Quality of life endometrial cancer 2008 | During the past week: Have you had any leakage of stools? | |
| en08a13q13 | Quality of life endometrial cancer 2008 | During the past week: Have you been limited in your daily activities because of problems with defecation? | |
| en08a13q14 | Quality of life endometrial cancer 2008 | During the past week: Have you been troubled by passing wind? | |
| en08a13q15 | Quality of life endometrial cancer 2008 | During the past week: Have you had cramps in your abdomen? | |
| en08a13q16 | Quality of life endometrial cancer 2008 | During the past week: Have you had diarrhea? | |
| en08a13q17 | Quality of life endometrial cancer 2008 | During the past week: Have you had blood in your stools? | |
| en08a13q18 | Quality of life endometrial cancer 2008 | During the past week: Have you had a bloated feeling in your abdomen? | |
| en08a13q19 | Quality of life endometrial cancer 2008 | During the past week: Have you had irritation or soreness in your vagina or vulva? | |
| en08a13q20 | Quality of life endometrial cancer 2008 | During the past week: Have you had bleeding from your vagina? | |
| en08a13q21 | Quality of life endometrial cancer 2008 | During the past week: Have you had mood swings? | |
| en08a13q22 | Quality of life endometrial cancer 2008 | During the past week: Have you had hot flushes and/or sweats? | |
| en08a13q23 | Quality of life endometrial cancer 2008 | During the past week: Have you had tingling or numbness in your hands or feet? | |
| en08a13q24 | Quality of life endometrial cancer 2008 | During the past week: Have you had aches or pains in your muscles or joints? | |
| en08a13q25 | Quality of life endometrial cancer 2008 | During the past week: Have you gained weight? | |
| en08a13q26 | Quality of life endometrial cancer 2008 | During the past week: Have you lost hair? | |
| en08a13q27 | Quality of life endometrial cancer 2008 | During the past week: Have you had skin problems? | |
| en08a13q28 | Quality of life endometrial cancer 2008 | During the past week: Has food and drink tasted differently from usual? | |
| en08a13q29 | Quality of life endometrial cancer 2008 | During the past week: Have you had problems with hearing? | |
| en08a13q30 | Quality of life endometrial cancer 2008 | During the past week: Have you felt physically less attractive as a result of your disease or treatment? | |
| en08a13q31 | Quality of life endometrial cancer 2008 | During the past week: Have you felt less feminine as a result of your disease or treatment? | |
| en08a13q32 | Quality of life endometrial cancer 2008 | During the past 4 weeks: To what extent were you interested in sex? | |
| en08a13q33 | Quality of life endometrial cancer 2008 | During the past 4 weeks: To what extent were you sexually active? | |
| en08a13q34 | Quality of life endometrial cancer 2008 | During the past 4 weeks: Has your vagina felt dry during sexual activity? | |
| en08a13q35 | Quality of life endometrial cancer 2008 | During the past 4 weeks: Has your vagina felt short and/or tight? | |
| en08a13q36 | Quality of life endometrial cancer 2008 | During the past 4 weeks: Have you had pain during sexual intercourse or other sexual activity? | |
| en08a13q37 | Quality of life endometrial cancer 2008 | During the past 4 weeks: Was sexual activity enjoyable for you? | |
| en08a13s01 | Quality of life endometrial cancer 2008 | Lymphedema scale | |
| en08a13s02 | Quality of life endometrial cancer 2008 | Urological symptoms scale | |
| en08a13s03 | Quality of life endometrial cancer 2008 | Gastrointestinal symptoms scale | |
| en08a13s04 | Quality of life endometrial cancer 2008 | Poor bodyimage scale | |
| en08a13s05 | Quality of life endometrial cancer 2008 | Sexual/vaginal problems scale | |
| en08a13s06 | Quality of life endometrial cancer 2008 | Pain in back and pelvis scale | |
| en08a13s07 | Quality of life endometrial cancer 2008 | Tingling/numbness scale | |
| en08a13s08 | Quality of life endometrial cancer 2008 | Muscular/joint pain scale | |
| en08a13s09 | Quality of life endometrial cancer 2008 | Hairloss scale | |
| en08a13s10 | Quality of life endometrial cancer 2008 | Taste change scale | |
| en08a13s11 | Quality of life endometrial cancer 2008 | Sexual Interest scale | |
| en08a13s12 | Quality of life endometrial cancer 2008 | Sexual Activity scale | |
| en08a13s13 | Quality of life endometrial cancer 2008 | Sexual Enjoyment scale | |
| en08a21q01 | Quality of life endometrial cancer 2008 | I make contact easily when I meet people | |
| en08a21q02 | Quality of life endometrial cancer 2008 | I often make a fuss about unimportant things | |
| en08a21q03 | Quality of life endometrial cancer 2008 | I often talk to strangers | |
| en08a21q04 | Quality of life endometrial cancer 2008 | I often feel unhappy | |
| en08a21q05 | Quality of life endometrial cancer 2008 | I am often irritated | |
| en08a21q06 | Quality of life endometrial cancer 2008 | I often feel inhibited in social interactions | |
| en08a21q07 | Quality of life endometrial cancer 2008 | I take a gloomy view on things | |
| en08a21q08 | Quality of life endometrial cancer 2008 | I find it hard to start a conversation | |
| en08a21q09 | Quality of life endometrial cancer 2008 | I am often in a bad mood | |
| en08a21q10 | Quality of life endometrial cancer 2008 | I am a closed kind of person | |
| en08a21q11 | Quality of life endometrial cancer 2008 | I would rather keep other people at a distance | |
| en08a21q12 | Quality of life endometrial cancer 2008 | I often find myself worrying about something | |
| en08a21q13 | Quality of life endometrial cancer 2008 | I am often down in the dumps | |
| en08a21q14 | Quality of life endometrial cancer 2008 | When socializing, I don\'t find the right things to talk about | |
| en08a21s01 | Quality of life endometrial cancer 2008 | Negative affect subscale | |
| en08a21s02 | Quality of life endometrial cancer 2008 | Social inhibition subscale | |
| en08a21s03 | Quality of life endometrial cancer 2008 | Type D personality | |
| en08a22q01 | Quality of life endometrial cancer 2008 | How much does your illness affect your life? | |
| en08a22q02 | Quality of life endometrial cancer 2008 | How long do you think your illness will continue? | |
| en08a22q03 | Quality of life endometrial cancer 2008 | How much control do you feel you have over your illness? | |
| en08a22q04 | Quality of life endometrial cancer 2008 | How much do you think your treatment can help your illness? | |
| en08a22q05 | Quality of life endometrial cancer 2008 | How much do you experience symptoms from your illness? | |
| en08a22q06 | Quality of life endometrial cancer 2008 | How concerned are you about your illness? | |
| en08a22q07 | Quality of life endometrial cancer 2008 | How well do you feel you understand your illness? | |
| en08a22q08 | Quality of life endometrial cancer 2008 | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| en08a23q01 | Quality of life endometrial cancer 2008 | I am bothered by fatigue | |
| en08a23q02 | Quality of life endometrial cancer 2008 | I get tired very quickly | |
| en08a23q03 | Quality of life endometrial cancer 2008 | I don’t do much during the day | |
| en08a23q04 | Quality of life endometrial cancer 2008 | I have enough energy for everyday life | |
| en08a23q05 | Quality of life endometrial cancer 2008 | Physically, I feel exhausted | |
| en08a23q06 | Quality of life endometrial cancer 2008 | I have problems starting things | |
| en08a23q07 | Quality of life endometrial cancer 2008 | I have problems thinking clearly | |
| en08a23q08 | Quality of life endometrial cancer 2008 | I feel no desire to do anything | |
| en08a23q09 | Quality of life endometrial cancer 2008 | Mentally, I feel exhausted | |
| en08a23q10 | Quality of life endometrial cancer 2008 | When I am doing something, I can concentrate quite well | |
| en08a23s01 | Quality of life endometrial cancer 2008 | FAS total score | |
| en08a24q01 | Quality of life endometrial cancer 2008 | I feel tense or \'wound up\' | |
| en08a24q02 | Quality of life endometrial cancer 2008 | I still enjoy the things I used to enjoy | |
| en08a24q03 | Quality of life endometrial cancer 2008 | I get a sort of frightened feeling as if something awful is about to happen | |
| en08a24q04 | Quality of life endometrial cancer 2008 | I can laugh and see the funny side of things | |
| en08a24q05 | Quality of life endometrial cancer 2008 | Worrying thoughts go through my mind | |
| en08a24q06 | Quality of life endometrial cancer 2008 | I feel cheerful | |
| en08a24q07 | Quality of life endometrial cancer 2008 | I can sit at ease and feel relaxed | |
| en08a24q08 | Quality of life endometrial cancer 2008 | I feel as if I am slowed down | |
| en08a24q09 | Quality of life endometrial cancer 2008 | I get a sort of frightened feeling like \'butterflies\' in the stomach | |
| en08a24q10 | Quality of life endometrial cancer 2008 | I have lost interest in my appearance | |
| en08a24q11 | Quality of life endometrial cancer 2008 | I feel restless, as if I have to be on the move | |
| en08a24q12 | Quality of life endometrial cancer 2008 | I look forward with enjoyment to things | |
| en08a24q13 | Quality of life endometrial cancer 2008 | I get sudden feelings of panic | |
| en08a24q14 | Quality of life endometrial cancer 2008 | I can enjoy a good book or radio or TV program | |
| en08a24s01 | Quality of life endometrial cancer 2008 | Anxiety total score | |
| en08a24s02 | Quality of life endometrial cancer 2008 | Depression total score | |
| en08a25q01 | Quality of life endometrial cancer 2008 | I am concerned about not being able to work if I become ill again | |
| en08a25q02 | Quality of life endometrial cancer 2008 | Concerns about losing health insurance keep me in the job I have now | |
| en08a25q03 | Quality of life endometrial cancer 2008 | I worry about being forced to retire or quit work before I am ready | |
| en08a25q04 | Quality of life endometrial cancer 2008 | Because of cancer I live each day one at a time | |
| en08a25q05 | Quality of life endometrial cancer 2008 | I feel grateful to be alive | |
| en08a25q06 | Quality of life endometrial cancer 2008 | I feel like time in my life is limited | |
| en08a25q07 | Quality of life endometrial cancer 2008 | I learned something about life because of having had cancer | |
| en08a25q08 | Quality of life endometrial cancer 2008 | Having had cancer makes me feel unsure about my future | |
| en08a25q09 | Quality of life endometrial cancer 2008 | I worry about my future | |
| en08a25q10 | Quality of life endometrial cancer 2008 | I am afraid to die | |
| en08a25q11 | Quality of life endometrial cancer 2008 | I can accept my mortality, that I am going to die someday | |
| en08a25q12 | Quality of life endometrial cancer 2008 | I feel like time in my life is running out | |
| en08a25q13 | Quality of life endometrial cancer 2008 | Having had cancer has made me realize that time is precious | |
| en08a25q14 | Quality of life endometrial cancer 2008 | Having had cancer has strengthened my religious faith or my sense of spirituality | |
| en08a25q15 | Quality of life endometrial cancer 2008 | I do not take my body for granted since the cancer | |
| en08a25q16 | Quality of life endometrial cancer 2008 | Having had cancer has made me more concerned about my health | |
| en08a25q17 | Quality of life endometrial cancer 2008 | I am more aware of physical problems or changes in my body since having had cancer | |
| en08a25q18 | Quality of life endometrial cancer 2008 | Other health problems not related to cancer bother me more than having had cancer | |
| en08a25q19 | Quality of life endometrial cancer 2008 | I worry about my health | |
| en08a25q20 | Quality of life endometrial cancer 2008 | I accept the changes my bode has gone through as a result of cancer and its treatment | |
| en08a25q21 | Quality of life endometrial cancer 2008 | I worry about the cancer coming back or about getting another cancer | |
| en08a25q22 | Quality of life endometrial cancer 2008 | New symptoms (aches, pains, getting sick or the flu) make me worry about the cancer coming back | |
| en08a25q23 | Quality of life endometrial cancer 2008 | Having had cancer makes me feel uncertain about my health | |
| en08a25q24 | Quality of life endometrial cancer 2008 | I am concerned that my energy has not returned to what it was before I had cancer | |
| en08a25q25 | Quality of life endometrial cancer 2008 | I am bothered that my body cannot do what it could before having had cancer | |
| en08a25q26 | Quality of life endometrial cancer 2008 | I worry about how my body looks | |
| en08a25q27 | Quality of life endometrial cancer 2008 | I feel disfigured | |
| en08a25q28 | Quality of life endometrial cancer 2008 | I sometimes wear clothing to cover up parts of my body I do not want others to see | |
| en08a25q29 | Quality of life endometrial cancer 2008 | Having had cancer has made me take better care of myself (my health) | |
| en08a25q30 | Quality of life endometrial cancer 2008 | Having to pay attention to my physical health interferes with my life | |
| en08a25q31 | Quality of life endometrial cancer 2008 | I am unable to think or remember things like I used to | |
| en08a25q32 | Quality of life endometrial cancer 2008 | I consider myself to be a cancer survivor | |
| en08a25q33 | Quality of life endometrial cancer 2008 | I feel a sense of pride or accomplishment from surviving cancer | |
| en08a25q34 | Quality of life endometrial cancer 2008 | I learned something about myself because of having had cancer | |
| en08a25q35 | Quality of life endometrial cancer 2008 | I am angry about having had cancer | |
| en08a25q36 | Quality of life endometrial cancer 2008 | I feel guilty for somehow being responsible for getting cancer | |
| en08a25q37 | Quality of life endometrial cancer 2008 | I feel that I am a role model to other people with cancer | |
| en08a25q38 | Quality of life endometrial cancer 2008 | As time goes on, having had cancer becomes less important to me | |
| en08a25q39 | Quality of life endometrial cancer 2008 | Having had cancer has made me feel old | |
| en08a25q40 | Quality of life endometrial cancer 2008 | I feel guilty today for not having been available to my family when I had cancer | |
| en08a25q41 | Quality of life endometrial cancer 2008 | My sense of myself as a cancer survivor has lessened over time | |
| en08a25q42 | Quality of life endometrial cancer 2008 | My life would be better today if I had not had cancer | |
| en08a25q43 | Quality of life endometrial cancer 2008 | Having had cancer has been the most difficult experience in my life | |
| en08a25q44 | Quality of life endometrial cancer 2008 | Having had cancer has not been as big a deal as other things that have happened in my life | |
| en08a25q45 | Quality of life endometrial cancer 2008 | I view having had cancer as a private experience | |
| en08a25q46 | Quality of life endometrial cancer 2008 | I wish to forget about having had cancer | |
| en08a25q47 | Quality of life endometrial cancer 2008 | I am constantly reminded that I had cancer | |
| en08a25q48 | Quality of life endometrial cancer 2008 | Something good has come from having had cancer | |
| en08a25q49 | Quality of life endometrial cancer 2008 | I think the doctors should have done a better job treating my cancer | |
| en08a25q50 | Quality of life endometrial cancer 2008 | Now that my treatment has ended I feel like my cancer doctors are not interested in my well-being | |
| en08a25q51 | Quality of life endometrial cancer 2008 | I wonder why I got cancer | |
| en08a25q52 | Quality of life endometrial cancer 2008 | It is important for me to know why I got cancer | |
| en08a25q53 | Quality of life endometrial cancer 2008 | Having had cancer turned into a reason to make changes in my life | |
| en08a25q54 | Quality of life endometrial cancer 2008 | Because of cancer I have become better about expressing what I want | |
| en08a25q55 | Quality of life endometrial cancer 2008 | Because of cancer I have more confidence in myself | |
| en08a25q56 | Quality of life endometrial cancer 2008 | Having had cancer has given me direction in life | |
| en08a25q57 | Quality of life endometrial cancer 2008 | I feel like cancer runs my life | |
| en08a25q58 | Quality of life endometrial cancer 2008 | Because of having had cancer I feel that I have more control of my life | |
| en08a25q59 | Quality of life endometrial cancer 2008 | I have financial problems that are related to having had cancer | |
| en08a25q60 | Quality of life endometrial cancer 2008 | Within the past year I have had difficulty getting my health insurance to pay some of my medical bills | |
| en08a25q61 | Quality of life endometrial cancer 2008 | I place a higher value on my relationships with family or friends than I did before having had cancer | |
| en08a25q62 | Quality of life endometrial cancer 2008 | I feel a special bond with people with cancer | |
| en08a25q63 | Quality of life endometrial cancer 2008 | Because of cancer I am more understanding of what other people may feel when they are seriously ill | |
| en08a25q64 | Quality of life endometrial cancer 2008 | Having had cancer has made me more willing to help others | |
| en08a25q65 | Quality of life endometrial cancer 2008 | I feel that I should give something back to others because I survived cancer | |
| en08a25q66 | Quality of life endometrial cancer 2008 | I worry about friends dying from cancer | |
| en08a25q67 | Quality of life endometrial cancer 2008 | Having had cancer has made me feel alone | |
| en08a25q68 | Quality of life endometrial cancer 2008 | Having had cancer has made me feel like some people (friends, family, co-workers) do not understand me | |
| en08a25q69 | Quality of life endometrial cancer 2008 | I am concerned about my children getting cancer | |
| en08a25q70 | Quality of life endometrial cancer 2008 | Uncertainty about my future affects my decisions to make plans (examples: work, recreation/travel, get married, get involved in relationships, have a family, go to school) | |
| en08a25q71 | Quality of life endometrial cancer 2008 | Having had cancer has motivated me to make plans for dying (get my affairs in order) | |
| en08a25q72 | Quality of life endometrial cancer 2008 | Having had cancer keeps me from doing activities I enjoy (examples: travel, socializing, recreation, time with family) | |
| en08a25q73 | Quality of life endometrial cancer 2008 | On-going cancer-related or treatment-related symptoms (for example bladder or bowel control, lymphedema, hair loss, scars, infertility, premature menopause, lack of energy, impotence/sexual problems, aches, pain or physical discomfort) interfere with my l | |
| en08a25q74 | Quality of life endometrial cancer 2008 | Uncertainties about my health or my future have made me delay getting married or getting involved in a serious relationship | |
| en08a25q75 | Quality of life endometrial cancer 2008 | I wonder how to tell a potential spouse, partner, boyfriend or girlfriend that I have had cancer | |
| en08a25q76 | Quality of life endometrial cancer 2008 | I am concerned about how to tell a spouse, partner, boyfriend, or girlfriend that I may not be able to have children | |
| en08a25q77 | Quality of life endometrial cancer 2008 | I worry about not having a spouse, partner, boyfriend or girlfriend | |
| en08a25q78 | Quality of life endometrial cancer 2008 | I am open and willing to discuss my cancer with my spouse/partner | |
| en08a25q79 | Quality of life endometrial cancer 2008 | My spouse/partner is open and willing to discuss my cancer with me | |
| en08a25q80 | Quality of life endometrial cancer 2008 | Uncertainty about my health has created problems in my relationship with my spouse/partner | |
| en08a25q81 | Quality of life endometrial cancer 2008 | I worry about my spouse/partner leaving me if I were to become ill again | |
| en08a25s01 | Quality of life endometrial cancer 2008 | IOCv1 - Physical: health awareness scale | |
| en08a25s02 | Quality of life endometrial cancer 2008 | IOCv1 - Physical: body changes scale | |
| en08a25s03 | Quality of life endometrial cancer 2008 | IOCv1 - Psychological: positive self-evaluation scale | |
| en08a25s04 | Quality of life endometrial cancer 2008 | IOCv1 - Psychological: negative self-evaluation scale | |
| en08a25s05 | Quality of life endometrial cancer 2008 | IOCv1 - Existential: positive outlook scale | |
| en08a25s06 | Quality of life endometrial cancer 2008 | IOCv1 - Existential: negative outlook scale | |
| en08a25s07 | Quality of life endometrial cancer 2008 | IOCv1 - Social: life interferences scale | |
| en08a25s08 | Quality of life endometrial cancer 2008 | IOCv1 - Social: value of relationships scale | |
| en08a25s09 | Quality of life endometrial cancer 2008 | IOCv1 - Meaning of cancer scale | |
| en08a25s10 | Quality of life endometrial cancer 2008 | IOCv1 - Health worry scale | |
| en08a25s11 | Quality of life endometrial cancer 2008 | IOCv1 - Positive higher order scale score | |
| en08a25s12 | Quality of life endometrial cancer 2008 | IOCv1 - Negative higher order scale score | |
| en08a25s13 | Quality of life endometrial cancer 2008 | IOCv2 - Altruism and empathy subscale | |
| en08a25s14 | Quality of life endometrial cancer 2008 | IOCv2 - Health awareness subscale | |
| en08a25s15 | Quality of life endometrial cancer 2008 | IOCv2 - Meaning of cancer subscale | |
| en08a25s16 | Quality of life endometrial cancer 2008 | IOCv2 - Positive self-evaluation subscale | |
| en08a25s17 | Quality of life endometrial cancer 2008 | IOCv2 - Appearance concerns subscale | |
| en08a25s18 | Quality of life endometrial cancer 2008 | IOCv2 - Body change concerns subscale | |
| en08a25s19 | Quality of life endometrial cancer 2008 | IOCv2 - Life interferences subscale | |
| en08a25s20 | Quality of life endometrial cancer 2008 | IOCv2 - Worry subscale | |
| en08a25s21 | Quality of life endometrial cancer 2008 | IOCv2 - Employment concerns subscale | |
| en08a25s22 | Quality of life endometrial cancer 2008 | IOCv2 - Relationship concerns subscale (partnered) | |
| en08a25s23 | Quality of life endometrial cancer 2008 | IOCv2 - Relationship concerns subscale (not partnered) | |
| en08a25s24 | Quality of life endometrial cancer 2008 | IOCv2 - Positive higher order scale score | |
| en08a25s25 | Quality of life endometrial cancer 2008 | IOCv2 - Negative higher order scale score | |
| en08a26q01 | Quality of life endometrial cancer 2008 | How much information have you received on: The diagnosis of your disease? | |
| en08a26q02 | Quality of life endometrial cancer 2008 | How much information have you received on: The extent (spread) of your disease? | |
| en08a26q03 | Quality of life endometrial cancer 2008 | How much information have you received on: The possible causes of your disease? | |
| en08a26q04 | Quality of life endometrial cancer 2008 | How much information have you received on: Whether the disease is under control? | |
| en08a26q05 | Quality of life endometrial cancer 2008 | How much information have you received on: The purpose of any medical tests you have had or may undergo? | |
| en08a26q06 | Quality of life endometrial cancer 2008 | How much information have you received on: The procedures of the medical tests? | |
| en08a26q07 | Quality of life endometrial cancer 2008 | How much information have you received on: The results of the medical tests you have already received? | |
| en08a26q08 | Quality of life endometrial cancer 2008 | How much information have you received on: The medical treatment (chemotherapy, radiotherapy, surgery or other treatment modality)? | |
| en08a26q09 | Quality of life endometrial cancer 2008 | How much information have you received on: Non-medical treatments (for example herbal therapy, homeopathy, relaxation therapy)? | |
| en08a26q10 | Quality of life endometrial cancer 2008 | How much information have you received on: The expected benefit of the treatment? | |
| en08a26q11 | Quality of life endometrial cancer 2008 | How much information have you received on: The possible side-effects of your treatment? | |
| en08a26q12 | Quality of life endometrial cancer 2008 | How much information have you received on: The expected effects of the treatment on disease symptoms? | |
| en08a26q13 | Quality of life endometrial cancer 2008 | How much information have you received on: The effects of the treatment on social and family life? | |
| en08a26q14 | Quality of life endometrial cancer 2008 | How much information have you received on: The effects of the treatment on sexual activity? | |
| en08a26q15 | Quality of life endometrial cancer 2008 | How much information have you received on: Additional help outside the hospital (e.g. help with daily activities, self help groups, district nurses)? | |
| en08a26q16 | Quality of life endometrial cancer 2008 | How much information have you received on: Rehabilitation services (e. g. physiotherapy, occupational therapy)? | |
| en08a26q17 | Quality of life endometrial cancer 2008 | How much information have you received on: Aspects of managing your illness at home? | |
| en08a26q18 | Quality of life endometrial cancer 2008 | How much information have you received on: Possible professional psychological support? | |
| en08a26q19 | Quality of life endometrial cancer 2008 | How much information have you received on: Different places of care (hospitals/outpatient services/home)? | |
| en08a26q20 | Quality of life endometrial cancer 2008 | How much information have you received on: Things that you can do to help yourself get well (rest, contact with others..)? | |
| en08a26q21 | Quality of life endometrial cancer 2008 | Have you received written information? | |
| en08a26q22 | Quality of life endometrial cancer 2008 | Have you received information on CD or tape / video? | |
| en08a26q23 | Quality of life endometrial cancer 2008 | Were you satisfied with the amount of information you received? | |
| en08a26q24 | Quality of life endometrial cancer 2008 | Do you wish to receive more information? | |
| en08a26q25 | Quality of life endometrial cancer 2008 | Do you wish that you had received less information? | |
| en08a26q26 | Quality of life endometrial cancer 2008 | Overall has the information you have received been helpful? | |
| en08a26s01 | Quality of life endometrial cancer 2008 | Information on your disease scale | |
| en08a26s02 | Quality of life endometrial cancer 2008 | Information on your medical tests scale | |
| en08a26s03 | Quality of life endometrial cancer 2008 | Information on treatment/your treatments scale | |
| en08a26s04 | Quality of life endometrial cancer 2008 | Information on other services scale | |
| en08a26s05 | Quality of life endometrial cancer 2008 | Information on other areas/places of care scale | |
| en08a26s06 | Quality of life endometrial cancer 2008 | Information on things patient can do to get well scale | |
| en08a27q01 | Quality of life endometrial cancer 2008 | Do you use the internet? | |
| en08a27q02 | Quality of life endometrial cancer 2008 | Did you use the internet to find information about endometrial cancer? |