IKNL Profiles > Quality of life prostate cancer 2011/2012

Publisher
IKNL Profiles study
Creator
Lonneke van de Poll-Franse
Created
Mar 17 2015
Description
Panel
iknl
Begin date
Oct 01 2011

Name English Dutch
Intro 1 Life after cancer Questionnaire about quality of life, use of care, and satisfaction with care, for people who have been diagnosed with …
02q01 What is currently your marital status?
02q02 What is the highest education level that you have completed?
06q01 Do you have a paid job at this moment?
06q02 Hours/week working as employee
06q03 Hours/week working as entrepeneur
06q04 How many weeks were you unable to work due to cancer?
06q05 Number of weeks unable to work
06q07a-06q07j Which changes have you experienced in your work situation due to cancer?
06q07f1 More hours working due to cancer
06q07g1 Less hours working due to cancer
06q06 If you do not have a paid job, which of the following reasons is most applicable to your situation?
06q06a Since which year did you not have a paid job? (pension/early retirement, unemployed, disabled)
06q06b Since which month did you not have a paid job? (pension/early retirement, unemployed, disabled)
06q08 Disability percentage
06q09 Disabled due to cancer
03q01 Do you smoke?
03q02 How long has it been since you've quit smoking?
03q03 Number of cigarettes a day
03q04 Number of cigars a day
03q05 Number of packages of pipe tabacco a week
03q06 Do you drink alcohol?
03q07 How long has it been since you've quit drinking alcohol?
03q08 Number of glasses of beer per week
03q09 Number of glasses of wine or port wine per week
03q10 Number of glasses of liquor per week
05q01 How many times did you have contact with your general practitioner in the past 12 months?
05q02 How many of these contact moments with your general practioner had to do with cancer or the aftermath of cancer?
05q03 How many times did you have contact with your specialist in the past 12 months?
05q04 How many of these contact moments with your specialist had to do with cancer or the aftermath of cancer?
05q05 Do you still have follow up appointments?
05q06 Did you discuss with your specialist how often you have to come back from this moment on?
05q07 Do you feel comfortable with this follow up scheme?
05q08 Did you receive care after the treatment of your illness?
05q09-05q20 Did you receive care after the treatment of your illness from below stated practitioners?
07q01, 07q04, 07q07, 07q10, 07q13, 07q16, 07q19, 07q22, 07q25, 07q28, 07q31, 07q34, 07q37, 07q40 Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had …
07q02, 07q05, 07q08, 07q11, 07q14, 07q17, 07q20, 07q23, 07q26, 07q29, 07q32, 07q35, 07q38, 07q41 Please indicate for each condition if you are treated for it or not.
07q03, 07q06, 07q09, 07q012, 07q15, 07q18, 07q21, 07q24, 07q27, 07q30, 07q33, 07q36, 07q39, 07q42 Please indicate for each condition whether it interferes with your activities or not.
09q01-09q28 We are interested in certain things about you and your health. Please answer each question by checking the box in the indicated manner. If …
09q29 How would you rate your overall health during the past week?
09q30 How would you rate your overall quality of life during the past week?
15q01-15q16 Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these…
15q17-15q21 Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these…
pr11a02q04 Do you take medications for the prostate cancer?
44q01-44q11 How true or false is each of the following statements about medication for you?
08q01-08q05 How true or false is each of the following statements about medication for you?
22q01 We are interested in your opinion about your disease. Please circle the number from 0 - 10 that best describes your experiences.
26q01-26q19 During your current disease or treatment, how much information have you received:
26q20 Have you received written information?
26q21 Have you received information on CD or tape / video?
26q22 Were you satisfied with the amount of information you received?
26q23a Do you wish to receive more information?
26q24a Do you wish that you had received less information?
26q25 Overall has the information you have received been helpful?
27q01 Do you use the internet?
27q02 Did you use the internet to find information about prostate cancer?
41q01 Which statement about information provision suits best to you?
41q02 How much information do you want?
41q03 Which statement about decision making suits best to you?
41q04-41q09 Which treatment was recommended by your doctor?
41q11-41q16 Which treatment did you finally chosen?

Variable Dataset English Dutch
pr11a01pat_id Quality of life prostate cancer 2011/2012 Patient identifier
pr11a01response Quality of life prostate cancer 2011/2012 Response status
pr11a01stage Quality of life prostate cancer 2011/2012 Stage
pr11a01grade Quality of life prostate cancer 2011/2012 Tumor differentiation
pr11a01gleason Quality of life prostate cancer 2011/2012 Gleason score
pr11a01ageinc Quality of life prostate cancer 2011/2012 Age category at time of diagnosis
pr11a01ageques Quality of life prostate cancer 2011/2012 Age category at time of questionnaire
pr11a01yrsdiag Quality of life prostate cancer 2011/2012 Time since diagnosis in categories
pr11a01BMI Quality of life prostate cancer 2011/2012 Body mass index
pr11a01prost Quality of life prostate cancer 2011/2012 Prostatectomy
pr11a01ebrt Quality of life prostate cancer 2011/2012 External beam radiotherapy
pr11a01horm Quality of life prostate cancer 2011/2012 Hormonal therapy
pr11a01brach Quality of life prostate cancer 2011/2012 Brachytherapie
pr11a01ww Quality of life prostate cancer 2011/2012 Watchful waiting/active surveillance
pr11a01turp Quality of life prostate cancer 2011/2012 TURP therapy
pr11a01other Quality of life prostate cancer 2011/2012 Therapy unknown
pr11a01gend Quality of life prostate cancer 2011/2012 Gender
pr11a02q01 Quality of life prostate cancer 2011/2012 What is currently your marital status?
pr11a02q02 Quality of life prostate cancer 2011/2012 What is the highest education level that you have completed?
pr11a06q01 Quality of life prostate cancer 2011/2012 Do you have a paid job at this moment?
pr11a06q02 Quality of life prostate cancer 2011/2012 Hours/week working as employee
pr11a06q03 Quality of life prostate cancer 2011/2012 Hours/week working as entrepeneur
pr11a06q04 Quality of life prostate cancer 2011/2012 How many weeks were you unable to work due to cancer?
pr11a06q05 Quality of life prostate cancer 2011/2012 Number of weeks unable to work
pr11a06q07a Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? Not applicable
pr11a06q07b Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? Nothing has changed in my work situation due to cancer
pr11a06q07c Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I have been retrained due to cancer
pr11a06q07d Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I got another job due to cancer
pr11a06q07e Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I have quit working due to cancer
pr11a06q07f Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I am working more hours due to cancer
pr11a06q07g Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I am working less hours due to cancer
pr11a06q07h Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I am disabled due to cancer
pr11a06q07i Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I have retired early
pr11a06q07j Quality of life prostate cancer 2011/2012 Which changes have you experienced in your work situation due to cancer? I have been fired due to cancer
pr11a06q07f1 Quality of life prostate cancer 2011/2012 More hours working due to cancer
pr11a06q07g1 Quality of life prostate cancer 2011/2012 Less hours working due to cancer
pr11a06q06 Quality of life prostate cancer 2011/2012 If you do not have a paid job, which of the following reasons is most applicable to your situation?
pr11a06q06a Quality of life prostate cancer 2011/2012 Since which year did you not have a paid job? (pension/early retirement, unemployed, disabled)
pr11a06q06b Quality of life prostate cancer 2011/2012 Since which month did you not have a paid job? (pension/early retirement, unemployed, disabled)
pr11a06q08 Quality of life prostate cancer 2011/2012 Disability percentage
pr11a06q09 Quality of life prostate cancer 2011/2012 Disabled due to cancer
pr11a03q01 Quality of life prostate cancer 2011/2012 Do you smoke?
pr11a03q02 Quality of life prostate cancer 2011/2012 How long has it been since you've quit smoking?
pr11a03q03 Quality of life prostate cancer 2011/2012 Number of cigarettes a day
pr11a03q04 Quality of life prostate cancer 2011/2012 Number of cigars a day
pr11a03q05 Quality of life prostate cancer 2011/2012 Number of packages of pipe tabacco a week
pr11a03q06 Quality of life prostate cancer 2011/2012 Can you state how many glasses of alcoholic beverages you drank on average per week in de past 12 months?
pr11a03q07 Quality of life prostate cancer 2011/2012 How long has it been since you've quit drinking alcohol?
pr11a03q08 Quality of life prostate cancer 2011/2012 Number of glasses of beer per week
pr11a03q09 Quality of life prostate cancer 2011/2012 Number of glasses of wine or port wine per week
pr11a03q10 Quality of life prostate cancer 2011/2012 Number of glasses of liquor per week
pr11a05q01 Quality of life prostate cancer 2011/2012 How many times did you have contact with your general practitioner in the past 12 months?
pr11a05q02 Quality of life prostate cancer 2011/2012 How many of these contact moments with your general practitioner had to do with cancer or the aftermath of cancer?
pr11a05q03 Quality of life prostate cancer 2011/2012 How many times did you have contact with your specialist in the past 12 months?
pr11a05q04 Quality of life prostate cancer 2011/2012 How many of these contact moments with your specialist had to do with cancer or the aftermath of cancer?
pr11a05q05 Quality of life prostate cancer 2011/2012 Do you still have follow up appointments?
pr11a05q06 Quality of life prostate cancer 2011/2012 Did you discuss with your specialist how often you have to come back from this moment on?
pr11a05q07 Quality of life prostate cancer 2011/2012 Do you feel comfortable with this follow up scheme?
pr11a05q08 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness?
pr11a05q09 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a psychologist?
pr11a05q10 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a sexologist?
pr11a05q11 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a social worker?
pr11a05q12 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a pastoral worker?
pr11a05q13 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a general practitioner?
pr11a05q14 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a dietist?
pr11a05q15 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a physiotherapist?
pr11a05q16 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a recovery and balance program?
pr11a05q17 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from creative therapy?
pr11a05q18 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a oncological nurse?
pr11a05q19 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from a peer group?
pr11a05q20 Quality of life prostate cancer 2011/2012 Did you receive care after the treatment of your illness from home care?
pr11a07q01 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: heart condition
pr11a07q04 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: stroke
pr11a07q07 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: high blood pressure
pr11a07q10 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: asthma, chronic bronchitis, COPD
pr11a07q13 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: diabetes
pr11a07q16 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: ulcer
pr11a07q19 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: kidney disease
pr11a07q22 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: liver disease
pr11a07q25 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: anemia or other blood condition
pr11a07q28 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: thyroid disease
pr11a07q31 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: depression
pr11a07q34 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: arthritis
pr11a07q37 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: backache
pr11a07q40 Quality of life prostate cancer 2011/2012 Do you have now, or did you have in the past 12 months: rheumatism
pr11a07q02 Quality of life prostate cancer 2011/2012 Are you being treated for: heart condition
pr11a07q05 Quality of life prostate cancer 2011/2012 Are you being treated for: stroke
pr11a07q08 Quality of life prostate cancer 2011/2012 Are you being treated for: high blood pressure
pr11a07q11 Quality of life prostate cancer 2011/2012 Are you being treated for: asthma, chronic bronchitis, COPD
pr11a07q14 Quality of life prostate cancer 2011/2012 Are you being treated for: diabetes
pr11a07q17 Quality of life prostate cancer 2011/2012 Are you being treated for: ulcer
pr11a07q20 Quality of life prostate cancer 2011/2012 Are you being treated for: kidney disease
pr11a07q23 Quality of life prostate cancer 2011/2012 Are you being treated for: liver disease
pr11a07q26 Quality of life prostate cancer 2011/2012 Are you being treated for: anemia or other blood condition
pr11a07q29 Quality of life prostate cancer 2011/2012 Are you being treated for: thyroid disease
pr11a07q32 Quality of life prostate cancer 2011/2012 Are you being treated for: depression
pr11a07q35 Quality of life prostate cancer 2011/2012 Are you being treated for: arthritis
pr11a07q38 Quality of life prostate cancer 2011/2012 Are you being treated for: backache
pr11a07q41 Quality of life prostate cancer 2011/2012 Are you being treated for: rheumatism
pr11a07q03 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: heart condtion
pr11a07q06 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: stroke
pr11a07q09 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: high blood pressure
pr11a07q12 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: asthma, chronic bronchitis, COPD
pr11a07q15 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: diabetes
pr11a07q18 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: ulcer
pr11a07q21 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: kidney disease
pr11a07q24 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: liver disease
pr11a07q27 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: anemia or other blood condition
pr11a07q30 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: thyroid disease
pr11a07q33 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: depression
pr11a07q36 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: arthritis
pr11a07q39 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: backache
pr11a07q42 Quality of life prostate cancer 2011/2012 Does the condition interfere with your activities: rheumatism
pr11a09q01 Quality of life prostate cancer 2011/2012 Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?
pr11a09q02 Quality of life prostate cancer 2011/2012 Do you have any trouble taking a long walk?
pr11a09q03 Quality of life prostate cancer 2011/2012 Do you have any trouble taking a short walk outside of the house?
pr11a09q04 Quality of life prostate cancer 2011/2012 Do you need to stay in bed or a chair during the day?
pr11a09q05 Quality of life prostate cancer 2011/2012 Do you need help with eating, dressing, washing yourself or using the toilet?
pr11a09q06 Quality of life prostate cancer 2011/2012 Were you limited in doing either your work or other daily activities?
pr11a09q07 Quality of life prostate cancer 2011/2012 Were you limited in pursuing your hobbies or other leisure time activities?
pr11a09q08 Quality of life prostate cancer 2011/2012 Were you short of breath?
pr11a09q09 Quality of life prostate cancer 2011/2012 Have you had pain?
pr11a09q10 Quality of life prostate cancer 2011/2012 Did you need to rest?
pr11a09q11 Quality of life prostate cancer 2011/2012 Have you had trouble sleeping?
pr11a09q12 Quality of life prostate cancer 2011/2012 Have you felt weak?
pr11a09q13 Quality of life prostate cancer 2011/2012 Have you lacked appetite?
pr11a09q14 Quality of life prostate cancer 2011/2012 Have you felt nauseated?
pr11a09q15 Quality of life prostate cancer 2011/2012 Have you vomited?
pr11a09q16 Quality of life prostate cancer 2011/2012 Have you been constipated?
pr11a09q17 Quality of life prostate cancer 2011/2012 Have you had diarrhea?
pr11a09q18 Quality of life prostate cancer 2011/2012 Were you tired?
pr11a09q19 Quality of life prostate cancer 2011/2012 Did pain interfere with your daily activities?
pr11a09q20 Quality of life prostate cancer 2011/2012 Have you had difficulty in concentrating on things, like reading a newspaper or watching television?
pr11a09q21 Quality of life prostate cancer 2011/2012 Did you feel tense?
pr11a09q22 Quality of life prostate cancer 2011/2012 Did you worry?
pr11a09q23 Quality of life prostate cancer 2011/2012 Did you feel irritable?
pr11a09q24 Quality of life prostate cancer 2011/2012 Did you feel depressed?
pr11a09q25 Quality of life prostate cancer 2011/2012 Have you had difficulty remembering things?
pr11a09q26 Quality of life prostate cancer 2011/2012 Has your physical condition or medical treatment interfered with your family life?
pr11a09q27 Quality of life prostate cancer 2011/2012 Has your physical condition or medical treatment interfered with your social activities?
pr11a09q28 Quality of life prostate cancer 2011/2012 Has your physical condition or medical treatment caused you financial difficulties during the past week?
pr11a09q29 Quality of life prostate cancer 2011/2012 How would you rate your overall health during the past week?
pr11a09q30 Quality of life prostate cancer 2011/2012 How would you rate your overall quality of life during the past week?
pr11a09s01 Quality of life prostate cancer 2011/2012 Global Health scale
pr11a09s02 Quality of life prostate cancer 2011/2012 Physical Functioning scale
pr11a09s03 Quality of life prostate cancer 2011/2012 Role Functioning scale
pr11a09s04 Quality of life prostate cancer 2011/2012 Emotional Functioning scale
pr11a09s05 Quality of life prostate cancer 2011/2012 Cognitive Functioning scale
pr11a09s06 Quality of life prostate cancer 2011/2012 Social Functioning scale
pr11a09s07 Quality of life prostate cancer 2011/2012 Fatigue scale
pr11a09s08 Quality of life prostate cancer 2011/2012 Nausea scale
pr11a09s09 Quality of life prostate cancer 2011/2012 Pain scale
pr11a09s10 Quality of life prostate cancer 2011/2012 Dyspnoea scale
pr11a09s11 Quality of life prostate cancer 2011/2012 Insomnia scale
pr11a09s12 Quality of life prostate cancer 2011/2012 Appetite scale
pr11a09s13 Quality of life prostate cancer 2011/2012 Constipation scale
pr11a09s14 Quality of life prostate cancer 2011/2012 Diarrhoea scale
pr11a09s15 Quality of life prostate cancer 2011/2012 Financial scale
pr11a15q01 Quality of life prostate cancer 2011/2012 During the past week: Have you had to urinate frequently during the day?
pr11a15q02 Quality of life prostate cancer 2011/2012 During the past week: Have you had to urinate frequently at night?
pr11a15q03 Quality of life prostate cancer 2011/2012 During the past week: When you felt the urge to pass urine, did you have to hurry to get to the toilet?
pr11a15q04 Quality of life prostate cancer 2011/2012 During the past week: Was it difficult for you to get enough sleep, because you needed to get up frequently at night to urinate?
pr11a15q05 Quality of life prostate cancer 2011/2012 During the past week: Have you had difficulty going out of the house because you needed to be close to a toilet?
pr11a15q06 Quality of life prostate cancer 2011/2012 During the past week: Have you had any unintentional release (leakage) of urine?
pr11a15q07 Quality of life prostate cancer 2011/2012 During the past week: Did you have pain when you urinated?
pr11a15q08 Quality of life prostate cancer 2011/2012 During the past week: Has wearing an incontinence aid been a problem for you?
pr11a15q09 Quality of life prostate cancer 2011/2012 During the past week: Have your daily activities been limited by your urinary problems?
pr11a15q10 Quality of life prostate cancer 2011/2012 During the past week: Have your daily activities been limited by your bowel problems?
pr11a15q11 Quality of life prostate cancer 2011/2012 During the past week: Have you had any unintentional release (leakage) of stools?
pr11a15q12 Quality of life prostate cancer 2011/2012 During the past week: Have you had blood in your stools?
pr11a15q13 Quality of life prostate cancer 2011/2012 During the past week: Did you have a bloated feeling in your abdomen?
pr11a15q14 Quality of life prostate cancer 2011/2012 During the past week: Did you have hot flushes?
pr11a15q15 Quality of life prostate cancer 2011/2012 During the past week: Have you had sore or enlarged nipples or breasts?
pr11a15q16 Quality of life prostate cancer 2011/2012 During the past week: Have you had swelling in your legs or ankles?
pr11a15q17 Quality of life prostate cancer 2011/2012 During the last 4 weeks: Has weight loss been a problem for you?
pr11a15q18 Quality of life prostate cancer 2011/2012 During the last 4 weeks: Has weight gain been a problem for you?
pr11a15q19 Quality of life prostate cancer 2011/2012 During the last 4 weeks: Have you felt less masculine as a result of your illness or treatment?
pr11a15q20 Quality of life prostate cancer 2011/2012 During the last 4 weeks: To what extent were you interested in sex?
pr11a15q21 Quality of life prostate cancer 2011/2012 During the last 4 weeks: To what extent were you sexually active (with or without intercourse)?
pr11a15q22 Quality of life prostate cancer 2011/2012 To what extent was sex enjoyable for you?
pr11a15q23 Quality of life prostate cancer 2011/2012 Did you have difficulty getting or maintaining an erection?
pr11a15q24 Quality of life prostate cancer 2011/2012 Did you have ejaculation problems (eg dry ejaculation)?
pr11a15q25 Quality of life prostate cancer 2011/2012 Have you felt uncomfortable about being sexually intimate?
pr11a02q04 Quality of life prostate cancer 2011/2012 Do you take medications for the prostate cancer?
pr11a44q01 Quality of life prostate cancer 2011/2012 My health, at present, depends on my medicines
pr11a44q02 Quality of life prostate cancer 2011/2012 Having to take medicines worries me
pr11a44q03 Quality of life prostate cancer 2011/2012 My life would be impossible without my medicines
pr11a44q04 Quality of life prostate cancer 2011/2012 I sometimes worry about the long-term effects of my medicines
pr11a44q05 Quality of life prostate cancer 2011/2012 Without my medicines I would become very ill
pr11a44q06 Quality of life prostate cancer 2011/2012 My medicines are no mystery to me
pr11a44q07 Quality of life prostate cancer 2011/2012 My health in the future will depend on my medicines
pr11a44q08 Quality of life prostate cancer 2011/2012 My medicines disrupt my life
pr11a44q09 Quality of life prostate cancer 2011/2012 I sometimes worry about becoming too dependent on my medicines
pr11a44q10 Quality of life prostate cancer 2011/2012 My medicines protect me from becoming worse
pr11a44q11 Quality of life prostate cancer 2011/2012 These medicines have unpleasant side effects
pr11a08q01 Quality of life prostate cancer 2011/2012 I forget to take my medicines
pr11a08q02 Quality of life prostate cancer 2011/2012 I alter the dose of my medicines
pr11a08q03 Quality of life prostate cancer 2011/2012 I stop taking my medicines for a while
pr11a08q04 Quality of life prostate cancer 2011/2012 I decide to miss out a dose
pr11a08q05 Quality of life prostate cancer 2011/2012 I take less than instructed
pr11a22q01 Quality of life prostate cancer 2011/2012 How much does your illness affect your life?
pr11a22q02 Quality of life prostate cancer 2011/2012 How long do you think your illness will continue?
pr11a22q03 Quality of life prostate cancer 2011/2012 How much control do you feel you have over your illness?
pr11a22q04 Quality of life prostate cancer 2011/2012 How much do you think your treatment can help your illness?
pr11a22q05 Quality of life prostate cancer 2011/2012 How much do you experience symptoms from your illness?
pr11a22q06 Quality of life prostate cancer 2011/2012 How concerned are you about your illness?
pr11a22q07 Quality of life prostate cancer 2011/2012 How well do you feel you understand your illness?
pr11a22q08 Quality of life prostate cancer 2011/2012 How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed?
pr11a26q01 Quality of life prostate cancer 2011/2012 The diagnosis of your disease?
pr11a26q02 Quality of life prostate cancer 2011/2012 The extent (spread) of your disease?
pr11a26q03 Quality of life prostate cancer 2011/2012 The possible causes of your disease?
pr11a26q04 Quality of life prostate cancer 2011/2012 Whether the disease is under control?
pr11a26q05 Quality of life prostate cancer 2011/2012 The purpose of any medical tests you have had or may undergo?
pr11a26q06 Quality of life prostate cancer 2011/2012 The procedures of the medical tests?
pr11a26q07 Quality of life prostate cancer 2011/2012 The results of the medical tests you have already received?
pr11a26q08 Quality of life prostate cancer 2011/2012 The medical treatment (chemotherapy, radiotherapy, surgery or other treatment modality)?
pr11a26q09 Quality of life prostate cancer 2011/2012 The expected benefit of the treatment?
pr11a26q10 Quality of life prostate cancer 2011/2012 The possible side-effects of your treatment?
pr11a26q11 Quality of life prostate cancer 2011/2012 The expected effects of the treatment on disease symptoms?
pr11a26q12 Quality of life prostate cancer 2011/2012 The effects of the treatment on social and family life?
pr11a26q13 Quality of life prostate cancer 2011/2012 The effects of the treatment on sexual activity?
pr11a26q14 Quality of life prostate cancer 2011/2012 Additional help outside the hospital (e.g. help with daily activities, self help groups, district nurses)?
pr11a26q15 Quality of life prostate cancer 2011/2012 Rehabilitation services (e. g. physiotherapy, occupational therapy)?
pr11a26q16 Quality of life prostate cancer 2011/2012 Aspects of managing your illness at home?
pr11a26q17 Quality of life prostate cancer 2011/2012 Possible professional psychological support?
pr11a26q18 Quality of life prostate cancer 2011/2012 Different places of care (hospitals/outpatient services/home)?
pr11a26q19 Quality of life prostate cancer 2011/2012 Things that you can do to help yourself get well (rest, contact with others..)?
pr11a26q20 Quality of life prostate cancer 2011/2012 Have you received written information?
pr11a26q21 Quality of life prostate cancer 2011/2012 Have you received information on CD or tape / video?
pr11a26q22 Quality of life prostate cancer 2011/2012 Were you satisfied with the amount of information you received?
pr11a26q23a Quality of life prostate cancer 2011/2012 Do you wish to receive more information?
pr11a26q24a Quality of life prostate cancer 2011/2012 Do you wish that you had received less information?
pr11a26q25 Quality of life prostate cancer 2011/2012 Overall has the information you have received been helpful?
pr11a27q01 Quality of life prostate cancer 2011/2012 Do you use the internet?
pr11a27q02 Quality of life prostate cancer 2011/2012 Did you use the internet to find information about prostate cancer?
pr11a26s01 Quality of life prostate cancer 2011/2012 Information about the disease
pr11a26s02 Quality of life prostate cancer 2011/2012 Information about medical tests
pr11a26s03 Quality of life prostate cancer 2011/2012 Information about treatments
pr11a26s04 Quality of life prostate cancer 2011/2012 Information about other services
pr11a26s05 Quality of life prostate cancer 2011/2012 Information about other areas/places of care
pr11a26s06 Quality of life prostate cancer 2011/2012 Information about things to do
pr11a26s07 Quality of life prostate cancer 2011/2012 Information about written information
pr11a26s08 Quality of life prostate cancer 2011/2012 Information on CD, tape or video
pr11a26s09 Quality of life prostate cancer 2011/2012 Satisfaction with the information received
pr11a26s11 Quality of life prostate cancer 2011/2012 Information about helpfulness
pr11a41q01 Quality of life prostate cancer 2011/2012 Which statement about information provision suits best to you?
pr11a41q02 Quality of life prostate cancer 2011/2012 How much information do you want?
pr11a41q03 Quality of life prostate cancer 2011/2012 Which statement about decision making suits best to you?
pr11a41q04 Quality of life prostate cancer 2011/2012 Which treatment was recommended by your doctor? Surgery (radical prostatectomy)
pr11a41q05 Quality of life prostate cancer 2011/2012 Which treatment was recommended by your doctor? Brachytherapy
pr11a41q06 Quality of life prostate cancer 2011/2012 Which treatment was recommended by your doctor? External beam radiotherapy
pr11a41q07 Quality of life prostate cancer 2011/2012 Which treatment was recommended by your doctor? Watchful waiting/active surveillance
pr11a41q08 Quality of life prostate cancer 2011/2012 Which treatment was recommended by your doctor? Hormonal therapy
pr11a41q09 Quality of life prostate cancer 2011/2012 Which treatment was recommended by your doctor? Other
pr11a41q11 Quality of life prostate cancer 2011/2012 Which treatment did you finally chosen? Surgery (radical prostatectomy)
pr11a41q12 Quality of life prostate cancer 2011/2012 Which treatment did you finally chosen? Brachytherapy
pr11a41q13 Quality of life prostate cancer 2011/2012 Which treatment did you finally chosen? External beam radiotherapy
pr11a41q14 Quality of life prostate cancer 2011/2012 Which treatment did you finally chosen? Watchful waiting/active surveillance
pr11a41q15 Quality of life prostate cancer 2011/2012 Which treatment did you finally chosen? Hormonal therapy
pr11a41q16 Quality of life prostate cancer 2011/2012 Which treatment did you finally chosen? Other