IKNL Profiles > Quality of life lymphoma > Quality of life multiple myeloma May 2010
Publisher
IKNL Profiles study
Creator
Simone Oerlemans, Lonneke van de Poll - Franse
Created
Oct 28 2015
Description
URL to resource
Panel
iknl
Begin date
May 01 2010
| Name | English | Dutch |
|---|---|---|
| Intro1 | Life after cancer. Please fill in the questionnaire by yourself, in your own pace. You can answer the questions by checking the box/number … | |
| 02q01 | What is currently your marital status? | |
| 02q02 | Indicate below which is your highest education level. | |
| 06q01 | Do you have a paid job at this moment? | |
| 06q02 | Paid job hours/week | |
| 06q06 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| 06q08 | Percentage of incapacity | |
| 06q09 | Due to cancer? | |
| 03q01 | Do you smoke? | |
| 03q02 | How long has it been you've quit smoking? | |
| 03q03 | Number of cigarettes per day | |
| 03q04 | Number of cigars per week | |
| 03q05 | Number of packages of pipe tobacco (50 grams) per week | |
| 03q06 | Can you state how many glasses of alcoholic drinks you drank on average per week in the past 12 months? | |
| 03q07 | How long has it been you've quit drinking alcohol? | |
| 03q08 | Number of glasses of beer per week | |
| 03q09 | Number of glasses of wine or port wine per week | |
| 03q10 | Number of glasses of liquor per week (eg. cognac, gin, whiskey, liquor) | |
| 04q01 - 04q08 | Can you indicate in the table below how many hours you have spend on average on a weekly basis on the following activities in the past summ… | |
| 04q09 | Have you done weekly sporting activities in the past year? | |
| 05q01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| 05q02 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q03 | How many times did you have contact with your specialist in the past 12 months? | |
| 05q04 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q05 | Do you still have follow up appointments? | |
| 05q06 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| 05q07 | Do you feel comfortable with this follow up scheme? | |
| 05q08 | Did you receive care after the treatment of your illness? | |
| 05q09 - 05q20 | From who did you receive care after the treatment of your ilness? | |
| 07q01 - 07q14 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 07q15 - 07q28 | Please indicate for each condition if you are treated for it or not. | |
| 07q29 - 07q42 | Please indicate for each condition whether it interferes with your activities or not. | |
| 06q07 | Which changes have you experienced in your work situation due to cancer? | |
| 53q01 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| 53q02 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| 53q03 | Did you have trouble getting life insurance, because of cancer? | |
| 53q04 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| 53q05 | Did you have trouble getting mortgage, because of cancer? | |
| 53q06 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| Intro2 | Instruction: We are interested in certain things about you and your health. Please answer each question by checking the box in the indicate… | |
| 09q01 - 09q30 | During the past week | |
| 12q01 - 12q20 | Symptoms or problems. Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you … | |
| 23q01- 23q10 | Fatique | |
| Intro4 | Anxiety and depression. The following questions are about how you feel right now. Please choose the answer that best describes your current… | |
| 24q01 | I feel tense or ‘wound up’ | |
| 24q02 | I still enjoy the things I used to enjoy | |
| 24q03 | I get a sort of frightened feeling as if something awful is about to happen | |
| 24q04 | I can laugh and see the funny side of things | |
| 24q05 | Worrying thoughts go through my mind | |
| 24q06 | I feel cheerful | |
| 24q07 | I can sit at ease and feel relaxed | |
| 24q08 | I feel as if I am slowed down | |
| 24q09 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| 24q10 | I have lost interest in my appearance | |
| 24q11 | I feel restless, as if I have to be on the move | |
| 24q12 | I look forward with enjoyment to things | |
| 24q13 | I get sudden feelings of panic | |
| 24q14 | I can enjoy a good book or radio or TV program |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| mm10a01pat_id | mm10a_EN_1.0 | Patient identifier | |
| mm10a1response | mm10a_EN_1.0 | Response status | |
| mm10a01gend | mm10a_EN_1.0 | Gender | |
| mm10a01ageinc | mm10a_EN_1.0 | Age category at time of diagnosis | |
| mm10a01ageques | mm10a_EN_1.0 | Age category at time of study | |
| mm10a1yrsdiag | mm10a_EN_1.0 | Time passed since diagnosis | |
| mm10a01treatment | mm10a_EN_1.0 | Primary treatment | |
| mm10a01BMI | mm10a_EN_1.0 | Body mass index | |
| mm10a01SES3 | mm10a_EN_1.0 | Sociaal Economic Status | |
| mm10a01mode | mm10a_EN_1.0 | Questionnaire filled in online or on paper | |
| mm10a02q01 | mm10a_EN_1.0 | What is currently your marital status? | |
| mm10a02q02 | mm10a_EN_1.0 | Indicate below which is your highest education level. | |
| mm10a06q01 | mm10a_EN_1.0 | Do you have a paid job at this moment? | |
| mm10a06q02 | mm10a_EN_1.0 | Paid job hours/week | |
| mm10a06q06 | mm10a_EN_1.0 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| mm10a06q08 | mm10a_EN_1.0 | Percentage of incapacity | |
| mm10a06q09 | mm10a_EN_1.0 | Due to cancer? | |
| mm10a03q01 | mm10a_EN_1.0 | Do you smoke? | |
| mm10a03q02 | mm10a_EN_1.0 | How long has it been you've quit smoking? | |
| mm10a03q03 | mm10a_EN_1.0 | Number of cigarettes per day | |
| mm10a03q04 | mm10a_EN_1.0 | Number of cigars per week | |
| mm10a03q05 | mm10a_EN_1.0 | Number of packages of pipe tobacco (50 grams) per week | |
| mm10a03q06 | mm10a_EN_1.0 | Can you state how many glasses of alcoholic drinks you drank on average per week in the past 12 months? | |
| mm10a03q07 | mm10a_EN_1.0 | How long has it been you've quit drinking alcohol? | |
| mm10a03q08 | mm10a_EN_1.0 | Number of glasses of beer per week | |
| mm10a03q09 | mm10a_EN_1.0 | Number of glasses of wine or port wine per week | |
| mm10a03q10 | mm10a_EN_1.0 | Number of glasses of liquor per week (eg. cognac, gin, whiskey, liquor) | |
| mm10a04q01 | mm10a_EN_1.0 | Going for a walk in the summer (also walking to work, shopping, and walking in leisure time) | |
| mm10a04q02 | mm10a_EN_1.0 | Going for a walk in the winter (also walking to work, shopping, and walking in leisure time) | |
| mm10a04q03 | mm10a_EN_1.0 | Riding a bike in the summer (also riding a bike to work, shopping, and cycling in leisure time) | |
| mm10a04q04 | mm10a_EN_1.0 | Riding a bike in the winter (also riding a bike to work, shopping, and cycling in leisure time) | |
| mm10a04q05 | mm10a_EN_1.0 | Gardening in the summer | |
| mm10a04q06 | mm10a_EN_1.0 | Gardening in the winter | |
| mm10a04q07 | mm10a_EN_1.0 | Keeping house in the summer (for example laundry, cleaning, cooking, taking care of children) | |
| mm10a04q08 | mm10a_EN_1.0 | Keeping house in the winter (for example laundry, cleaning, cooking, taking care of children) | |
| mm10a04q09 | mm10a_EN_1.0 | Have you done weekly sporting activities in the past year? | |
| mm10a05q01 | mm10a_EN_1.0 | How many times did you have contact with your general practitioner in the past 12 months? | |
| mm10a05q02 | mm10a_EN_1.0 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| mm10a05q03 | mm10a_EN_1.0 | How many times did you have contact with your specialist in the past 12 months? | |
| mm10a05q04 | mm10a_EN_1.0 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| mm10a05q05 | mm10a_EN_1.0 | Do you still have follow up appointments? | |
| mm10a05q06 | mm10a_EN_1.0 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| mm10a05q07 | mm10a_EN_1.0 | Do you feel comfortable with this follow up scheme? | |
| mm10a05q08 | mm10a_EN_1.0 | Did you receive care after the treatment of your illness? | |
| mm10a05q09 | mm10a_EN_1.0 | Did you get extra care from a psychologist? | |
| mm10a05q10 | mm10a_EN_1.0 | Did you get extra care from a sexologist? | |
| mm10a05q11 | mm10a_EN_1.0 | Did you get extra care from a social worker? | |
| mm10a05q12 | mm10a_EN_1.0 | Did you get extra care from pastoral care? | |
| mm10a05q13 | mm10a_EN_1.0 | Did you get extra care from your general practitioner? | |
| mm10a05q14 | mm10a_EN_1.0 | Did you get extra care from a dietist | |
| mm10a05q15 | mm10a_EN_1.0 | Did you get extra care from a physiotherapist? | |
| mm10a05q16 | mm10a_EN_1.0 | Did you get extra care from recovery and balance? | |
| mm10a05q17 | mm10a_EN_1.0 | Did you get extra care from creative therapy? | |
| mm10a05q18 | mm10a_EN_1.0 | Did you get extra care from an oncological nurse? | |
| mm10a05q19 | mm10a_EN_1.0 | Did you get extra care from a peer group | |
| mm10a05q20 | mm10a_EN_1.0 | Did you get extra care from someone else? | |
| mm10a07q01 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Heart condition | |
| mm10a07q02 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Stroke | |
| mm10a07q03 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: High blood pressure | |
| mm10a07q04 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Asthma, chonic bronchitis, COPD | |
| mm10a07q05 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Diabetes | |
| mm10a07q06 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Ulcer | |
| mm10a07q07 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Kidney disease | |
| mm10a07q08 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Liver disease | |
| mm10a07q09 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Anemia or other blood condition | |
| mm10a07q10 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Thyroid disease | |
| mm10a07q11 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Depression | |
| mm10a07q12 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Arthritis | |
| mm10a07q13 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Backache | |
| mm10a07q14 | mm10a_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Rheumatism | |
| mm10a07q15 | mm10a_EN_1.0 | Are you being treated for your heart condition? | |
| mm10a07q16 | mm10a_EN_1.0 | Are you being treated for your stroke? | |
| mm10a07q17 | mm10a_EN_1.0 | Are you being treated for your high blood pressure? | |
| mm10a07q18 | mm10a_EN_1.0 | Are you being treated for your asthma, chronic bronchitis or COPD? | |
| mm10a07q19 | mm10a_EN_1.0 | Are you being treated for your diabetes? | |
| mm10a07q20 | mm10a_EN_1.0 | Are you being treated for your ulcer? | |
| mm10a07q21 | mm10a_EN_1.0 | Are you being treated for your kidney disease? | |
| mm10a07q22 | mm10a_EN_1.0 | Are you being treated for your liver disease? | |
| mm10a07q23 | mm10a_EN_1.0 | Are you being treated for your anemia or other blood condition? | |
| mm10a07q24 | mm10a_EN_1.0 | Are you being treated for your thyroid disease? | |
| mm10a07q25 | mm10a_EN_1.0 | Are you being treated for your depression? | |
| mm10a07q26 | mm10a_EN_1.0 | Are you being treated for your arthritis? | |
| mm10a07q27 | mm10a_EN_1.0 | Are you being treated for your backache? | |
| mm10a07q28 | mm10a_EN_1.0 | Are you being treated for your rheumatism? | |
| mm10a07q29 | mm10a_EN_1.0 | Does your heart condition interfere with your activities? | |
| mm10a07q30 | mm10a_EN_1.0 | Does your stroke interfere with your activities? | |
| mm10a07q31 | mm10a_EN_1.0 | Does your high blood pressure interfere with your activities? | |
| mm10a07q32 | mm10a_EN_1.0 | Does your asthma, chronic bronchitis or COPD interfere with your activities? | |
| mm10a07q33 | mm10a_EN_1.0 | Does your diabetes interfere with your activities? | |
| mm10a07q34 | mm10a_EN_1.0 | Does your ulcer interfere with your activities? | |
| mm10a07q35 | mm10a_EN_1.0 | Does your kidney disease interfere with your activities? | |
| mm10a07q36 | mm10a_EN_1.0 | Does your liver disease interfere with your activities? | |
| mm10a07q37 | mm10a_EN_1.0 | Does your anemia or other blood condition interfere with your activities? | |
| mm10a07q38 | mm10a_EN_1.0 | Does your thyroid disease interfere with your activities? | |
| mm10a07q39 | mm10a_EN_1.0 | Does your depression interfere with your activities? | |
| mm10a07q40 | mm10a_EN_1.0 | Does your arthritis interfere with your activities? | |
| mm10a07q41 | mm10a_EN_1.0 | Does your backache interfere with your activities? | |
| mm10a07q42 | mm10a_EN_1.0 | Does your rheumatism interfere with your activities? | |
| mm10a06q07 | mm10a_EN_1.0 | Which changes have you experienced in your work situation due to cancer? | |
| mm10a53q01 | mm10a_EN_1.0 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| mm10a53q02 | mm10a_EN_1.0 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| mm10a53q03 | mm10a_EN_1.0 | Did you have trouble getting life insurance, because of cancer? | |
| mm10a53q04 | mm10a_EN_1.0 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| mm10a53q05 | mm10a_EN_1.0 | Did you have trouble getting mortgage, because of cancer? | |
| mm10a53q06 | mm10a_EN_1.0 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| mm10a09q01 | mm10a_EN_1.0 | Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? | |
| mm10a09q02 | mm10a_EN_1.0 | Do you have any trouble taking a long walk? | |
| mm10a09q03 | mm10a_EN_1.0 | Do you have any trouble taking a short walk outside of the house? | |
| mm10a09q04 | mm10a_EN_1.0 | Do you need to stay in bed or a chair during the day? | |
| mm10a09q05 | mm10a_EN_1.0 | Do you need help with eating, dressing, washing yourself or using the toilet? | |
| mm10a09q06 | mm10a_EN_1.0 | Were you limited in doing either your work or other daily activities? | |
| mm10a09q07 | mm10a_EN_1.0 | Were you limited in pursuing your hobbies or other leisure time activities | |
| mm10a09q08 | mm10a_EN_1.0 | Were you short of breath? | |
| mm10a09q09 | mm10a_EN_1.0 | Have you had pain? | |
| mm10a09q10 | mm10a_EN_1.0 | Did you need to rest? | |
| mm10a09q11 | mm10a_EN_1.0 | Have you had trouble sleeping? | |
| mm10a09q12 | mm10a_EN_1.0 | Have you felt weak? | |
| mm10a09q13 | mm10a_EN_1.0 | Have you lacked appetite? | |
| mm10a09q14 | mm10a_EN_1.0 | Have you felt nauseated? | |
| mm10a09q15 | mm10a_EN_1.0 | Have you vomited? | |
| mm10a09q16 | mm10a_EN_1.0 | Have you been constipated? | |
| mm10a09q17 | mm10a_EN_1.0 | Have you had diarrhea? | |
| mm10a09q18 | mm10a_EN_1.0 | Were you tired? | |
| mm10a09q19 | mm10a_EN_1.0 | Did pain interfere with your daily activities? | |
| mm10a09q20 | mm10a_EN_1.0 | Have you had difficulty in concentrating on things, like reading a newspaper or watching television? | |
| mm10a09q21 | mm10a_EN_1.0 | Did you feel tense? | |
| mm10a09q22 | mm10a_EN_1.0 | Did you worry? | |
| mm10a09q23 | mm10a_EN_1.0 | Did you feel irritable? | |
| mm10a09q24 | mm10a_EN_1.0 | Did you feel depressed? | |
| mm10a09q25 | mm10a_EN_1.0 | Have you had difficulty remembering things? | |
| mm10a09q26 | mm10a_EN_1.0 | Has your physical condition or medical treatment interfered with your family life? | |
| mm10a09q27 | mm10a_EN_1.0 | Has your physical condition or medical treatment interfered with your social activities? | |
| mm10a09q28 | mm10a_EN_1.0 | Has your physical condition or medical treatment caused you financial difficulties? | |
| mm10a09q29 | mm10a_EN_1.0 | How would you rate your overall health during the past week? | |
| mm10a09q30 | mm10a_EN_1.0 | How would you rate your overall quality of life during the past week? | |
| mm10a09s01 | mm10a_EN_1.0 | Global health status/QoL | |
| mm10a09s02 | mm10a_EN_1.0 | Physical Function | |
| mm10a09s03 | mm10a_EN_1.0 | Role Functiong | |
| mm10a09s04 | mm10a_EN_1.0 | Emotional Function | |
| mm10a09s05 | mm10a_EN_1.0 | Cognitive Function | |
| mm10a09s06 | mm10a_EN_1.0 | Social Function | |
| mm10a09s07 | mm10a_EN_1.0 | Fatigue | |
| mm10a09s08 | mm10a_EN_1.0 | Nausea / vomiting | |
| mm10a09s09 | mm10a_EN_1.0 | Pain | |
| mm10a09s10 | mm10a_EN_1.0 | Dyspnoea | |
| mm10a09s11 | mm10a_EN_1.0 | Insomnia | |
| mm10a09s12 | mm10a_EN_1.0 | Appetite loss | |
| mm10a09s13 | mm10a_EN_1.0 | Constipation | |
| mm10a09s14 | mm10a_EN_1.0 | Diarrhea | |
| mm10a09s15 | mm10a_EN_1.0 | Financial problems | |
| mm10a12q01 | mm10a_EN_1.0 | Have you had bone aches or pain? | |
| mm10a12q02 | mm10a_EN_1.0 | Have you had pain in your back? | |
| mm10a12q03 | mm10a_EN_1.0 | Have you had pain in your hip? | |
| mm10a12q04 | mm10a_EN_1.0 | Have you had pain in your arm or shoulder? | |
| mm10a12q05 | mm10a_EN_1.0 | Have you had pain in your chest? | |
| mm10a12q06 | mm10a_EN_1.0 | If you had pain did it increase with activity? | |
| mm10a12q07 | mm10a_EN_1.0 | Did you feel drowsy? | |
| mm10a12q08 | mm10a_EN_1.0 | Did you feel thirsty? | |
| mm10a12q09 | mm10a_EN_1.0 | Have you felt ill? | |
| mm10a12q10 | mm10a_EN_1.0 | Have you had a dry mouth? | |
| mm10a12q11 | mm10a_EN_1.0 | Have you lost any hair? | |
| mm10a12q12 | mm10a_EN_1.0 | Answer this question only if you lost any hair: Were you upset by the loss of your hair? | |
| mm10a12q13 | mm10a_EN_1.0 | Did you have tingling hands or feet? | |
| mm10a12q14 | mm10a_EN_1.0 | Did you feel restless or agitated? | |
| mm10a12q15 | mm10a_EN_1.0 | Have you had acid indigestion or heartburn? | |
| mm10a12q16 | mm10a_EN_1.0 | Have you had burning or sore eyes? | |
| mm10a12q17 | mm10a_EN_1.0 | Have you felt physically less attractive as a result of your disease or treatment? | |
| mm10a12q18 | mm10a_EN_1.0 | Have you been thinking about your illness? | |
| mm10a12q19 | mm10a_EN_1.0 | Have you been worried about dying? | |
| mm10a12q20 | mm10a_EN_1.0 | Have you worried about your health in the future? | |
| mm10a23q01 | mm10a_EN_1.0 | I am bothered by fatigue | |
| mm10a23q02 | mm10a_EN_1.0 | I get tired very quickly | |
| mm10a23q03 | mm10a_EN_1.0 | I don’t do much during the day | |
| mm10a23q04 | mm10a_EN_1.0 | I have enough energy for everyday life | |
| mm10a23q05 | mm10a_EN_1.0 | Physically, I feel exhausted | |
| mm10a23q06 | mm10a_EN_1.0 | I have problems starting things | |
| mm10a23q07 | mm10a_EN_1.0 | I have problems thinking clearly | |
| mm10a23q08 | mm10a_EN_1.0 | I feel no desire to do anything | |
| mm10a23q09 | mm10a_EN_1.0 | Mentally, I feel exhausted | |
| mm10a23q10 | mm10a_EN_1.0 | When I am doing something, I can concentrate quite well | |
| mm10a23s01 | mm10a_EN_1.0 | FAS total score | |
| mm10a24q01 | mm10a_EN_1.0 | I feel tense or ‘wound up’ | |
| mm10a24q02 | mm10a_EN_1.0 | I still enjoy the things I used to enjoy | |
| mm10a24q03 | mm10a_EN_1.0 | I get a sort of frightened feeling as if something awful is about to happen | |
| mm10a24q04 | mm10a_EN_1.0 | I can laugh and see the funny side of things | |
| mm10a24q05 | mm10a_EN_1.0 | Worrying thoughts go through my mind | |
| mm10a24q06 | mm10a_EN_1.0 | I feel cheerful | |
| mm10a24q07 | mm10a_EN_1.0 | I can sit at ease and feel relaxed | |
| mm10a24q08 | mm10a_EN_1.0 | I feel as if I am slowed down | |
| mm10a24q09 | mm10a_EN_1.0 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| mm10a24q10 | mm10a_EN_1.0 | I have lost interest in my appearance | |
| mm10a24q11 | mm10a_EN_1.0 | I feel restless, as if I have to be on the move | |
| mm10a24q12 | mm10a_EN_1.0 | I look forward with enjoyment to things | |
| mm10a24q13 | mm10a_EN_1.0 | I get sudden feelings of panic | |
| mm10a24q14 | mm10a_EN_1.0 | I can enjoy a good book or radio or TV program | |
| mm10a24s01 | mm10a_EN_1.0 | Anxiety total score | |
| mm10a24s02 | mm10a_EN_1.0 | Depression total score |