LISS panel > Communicating personalized health information
Publisher
Centerdata
Creator
Ruben Vromans (Tilburg University)
Created
Apr 26 2022
Description
This study is about communicating about risks and side-effects of medical treatments. The goal is to understand how people use and interpret this information.
URL to resource
Panel
lissdata
Begin date
Apr 05 2021
| Name | English | Dutch |
|---|---|---|
| {intro_1} | This questionnaire is about the communication of the risks and side effects of treatments. What is the purpose of this study? What is the p… | Deze vragenlijst gaat over het communiceren over risico’s en bijwerkingen van behandelingen. Wat is het doel van het onderzoek? Wat is het … |
| {intro_2} | On the following page is a description of a situation. Please read this description carefully and imagine that you are the person experienc… | Op de volgende pagina wordt een situatie beschreven. Lees deze aandachtig door. Wij vragen u net te doen alsof u deze situatie doormaakt. D… |
| {SCENARIO1_SKINCANCER} | Imagine that a malignant growth has been found on your lower arm. Your doctor explains that it is a basal cell carcinoma, which is a form o… | Stel, er is bij u een kwaadaardig plekje op uw onderarm gevonden. De arts geeft aan dat het om een basaalcelcarcinoom gaat. Dat is een vorm… |
| ua020 - ua024 | The information booklet reports the following about a potential side effect of the operation. [IMAGE] [if ua018 = 1: If you are having diff… | In het informatieboekje leest u het volgende over een mogelijke bijwerking van de operatie. [AFBEELDING] [if ua018 = 1: Indien u de informa… |
| ua025 - ua028 | The information about a potential side effect of the operation is shown here one more time. [IMAGE] [if ua018 = 1: If you are having diffic… | Hier ziet u de informatie over een mogelijke bijwerking van de operatie nog een keer. [AFBEELDING] [if ua018 = 1: Indien u de informatie ni… |
| {intro_3} | On the following page, you will be shown a new description of a situation. Please read this description carefully and imagine that you are … | Op de volgende pagina wordt een nieuwe situatie beschreven. Lees deze aandachtig door. Wij vragen u net te doen alsof u deze situatie doorm… |
| {SCENARIO_CHOLESTEROL} | Imagine your doctor has recently told you that your cholesterol is high. Cholesterol is a fatty substance. If your cholesterol is too high … | Stel, uw arts vertelde u laatst dat u een verhoogd cholesterolgehalte hebt. Cholesterol is een vetachtige stof. Als uw cholesterol jarenlan… |
| ua029 - ua033 | The information booklet reports the following about a potential side effect of the medication. [IMAGE]* [if ua018 = 1: If you are having di… | In het informatieboekje leest u het volgende over een mogelijke bijwerking van de medicatie. [AFBEELDING]* [if ua018 = 1: Indien u de infor… |
| ua034 - ua037 | The information about a potential side effect of the medication is shown here one more time. [IMAGE] [if ua018 = 1: If you are having diffi… | Hier ziet u de informatie over een mogelijke bijwerking van de medicatie nog een keer. [AFBEELDING] [if ua018 = 1: Indien u de informatie n… |
| {intro_4} | On the following page, you will be shown a new description of a situation. This is the third and final situation in part one of this questi… | Op de volgende pagina wordt weer een nieuwe situatie beschreven. Dit is de derde en laatste situatie van deel één van de vragenlijst. Lees … |
| {SCENARIO3_COLONCANCER} | Imagine you were diagnosed with colon cancer a few months ago. You then underwent an operation in which a surgeon removed the cancer from y… | Stel, er is een aantal maanden geleden bij u dikke darmkanker vastgesteld. Tijdens een operatie heeft de chirurg de kanker uit de dikke dar… |
| ua038 - ua042 | The information booklet reports the following about a potential side effect of the chemotherapy. [IMAGE] [if ua018 = 1: If you are having d… | In het informatieboekje leest u het volgende over een mogelijke bijwerking van de chemotherapie. [AFBEELDING] [if ua018 = 1: Indien u de in… |
| ua043 - ua046 | The information about a potential side effect of the chemotherapy is shown here one more time. [IMAGE] [if ua018 = 1: If you are having dif… | Hier ziet u de informatie over een mogelijke bijwerking van de chemotherapie nog een keer. [AFBEELDING] [if ua018 = 1: Indien u de informat… |
| {intro_5} | You have reached the second part of this questionnaire. In this part, we would like to find out how you handle numbers and graphs. We will … | U bent aangekomen bij het tweede deel van deze vragenlijst. In dit onderdeel zijn we benieuwd hoe u met getallen en grafieken omgaat. Ook v… |
| ua047 | Imagine you were to receive information about the risks of side effects after a treatment. To what extent would you want to know your perso… | Stel, u zou informatie ontvangen over de risico’s op bijwerkingen na een behandeling. In hoeverre zou u behoefte hebben om te weten wat uw … |
| ua048 | Suppose you were to receive information about your personal probability of experiencing a side effect after receiving treatment. Would you … | Stel, u ontvangt informatie over uw persoonlijke kans op een bijwerking na een behandeling. Zou u dan ook willen weten wat uw persoonlijk r… |
| ua049 - ua052 | Information about diseases and side effects often talks about probabilities, for example the chance of getting a certain disease or experie… | In informatie over ziektes en bijwerkingen wordt vaak gesproken over kansen, bijvoorbeeld hoe groot de kans is op het krijgen van een bepaa… |
| ua053 - ua056 | Information about diseases and side effects often talks about probabilities, for example the chance of getting a certain disease or experie… | In informatie over ziektes en bijwerkingen wordt vaak gesproken over kansen, bijvoorbeeld hoe groot de kans is op het krijgen van een bepaa… |
| {Intro_6} | The following section is about the comprehensibility of health-related information. We are going to show you 13 words that are used in heal… | Het volgende onderdeel gaat over de begrijpelijkheid van gezondheidsinformatie. U krijgt zo 13 woorden te zien die worden gebruikt in de ge… |
| ua057 | What does the following word mean? Orthodontics | Wat betekent het volgende woord? Orthodontie |
| ua058 | What does the following word mean? Reflux | Wat betekent het volgende woord? Reflux |
| ua059 | What does the following word mean? Chlamydia | Wat betekent het volgende woord? Chlamydia Chlamydia |
| ua060 | What does the following word mean? Plaque | Wat betekent het volgende woord? Plaque |
| ua061 | What does the following word mean? Obesity | Wat betekent het volgende woord? Obesitas |
| ua062 | What does the following word mean? Biopsy | Wat betekent het volgende woord? Biopsie |
| ua063 | What does the following word mean? Malaise | Wat betekent het volgende woord? Malaise |
| ua064 | What does the following word mean? Diaphragm | Wat betekent het volgende woord? Pessarium |
| ua065 | What does the following word mean? Gelling agent | Wat betekent het volgende woord? Geleermiddel |
| ua066 | What does the following word mean? Chiropractic | Wat betekent het volgende woord? Chiropractie |
| ua067 | What does the following word mean? Echography | Wat betekent het volgende woord? Echografie |
| ua068 | What does the following word mean? Flaking | Wat betekent het volgende woord? Schilfering |
| ua069 | What does the following word mean? Ventricle | Wat betekent het volgende woord? Ventrikel |
| {SAHLANSWERS1} | Those were the 13 words. Do you want to know which words you chose the correct definition for? | Dit waren de 13 woorden. Wilt u weten van welke woorden u de juiste betekenis hebt gekozen? |
| {Goed1 – Goed13} | You chose the correct definition for the following words: | U hebt van de volgende woorden de betekenis juist gekozen: |
| {intro_7} | In the following section, you will be shown health-related information presented in the form of images. After you have viewed each image, y… | In het volgende deel krijgt u gezondheidsinformatie te zien die gepresenteerd wordt in afbeeldingen. Na het zien van de afbeelding krijgt u… |
| ua070 | Below is some information about different types of cancer. [IMAGE] Of all people who die of cancer, approximately what percentage die of co… | Hieronder vindt u informatie over verschillende vormen van kanker. [AFBEELDING] Ongeveer hoeveel procent van de mensen die overlijden aan k… |
| ua071 | The following image shows the distribution of men and women among patients with disease X. The total number of circles in the image is 100.… | De volgende figuur laat de verdeling van mannen en vrouwen zien bij patiënten met de ziekte X. De figuur laat in totaal 100 cirkels zien. [… |
| ua072 | A magazine shows two adverts. Both adverts are for a medication that treats a heart condition. Both adverts have a graph showing the effect… | In een tijdschrift ziet u twee advertenties. De advertenties zijn allebei voor een medicijn om een hartziekte te behandelen. Beide adverten… |
| ua073 | A newspaper shows two adverts. Both adverts are for a treatment for psoriasis patients. Both adverts have a graph showing the effectiveness… | In de krant ziet u twee advertenties. De advertenties zijn allebei voor een behandeling bij psoriasis. Beide advertenties laten een grafiek… |
| {intro_8} | You have almost completed the questionnaire. We have a few final questions about your experiences with the diseases and conditions that you… | De vragenlijst is nu bijna afgerond. Tot slot stellen wij nog enkele vragen over uw ervaringen met de aandoeningen en/of de behandelingen d… |
| ua074 – ua076 | Have you (or someone in your family) suffered from one of the following diseases or conditions in the past? | Hebt u (of heeft iemand in uw familie) in het verleden een vorm van een van de volgende aandoeningen gehad? |
| ua077 – ua079 | Have you undergone any of the following treatments in the past? | Hebt u in het verleden een van de volgende behandeling ondergaan? |
| ua080 – ua082 | Have you experienced any of the listed side effects? | Hebt u een van de genoemde bijwerkingen zelf ervaren? |
| {outro} | Thank you for completing this questionnaire. The probabilities of the side effects presented in the first part of this questionnaire were m… | Hartelijk bedankt voor het invullen van deze vragenlijst. De genoemde kansen op het hebben van de bijwerkingen situaties in het begin van d… |
| ua083 – ua087 | Note: Please complete the questionnaire fully until you are returned to the initial screen. Only then will the system register the question… | NB: Maakt u alstublieft de vragenlijst af totdat u weer bij het beginscherm komt. Pas dan registreert het systeem de vragenlijst als volled… |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| nomem_encr | ua21a | Number of the household member encrypted | |
| ua21a_m | ua21a | Year and month of the field work period | |
| ua21a001 | ua21a | Random number: condition to which respondents were assigned to determine which pictures they saw in the presented scenarios | |
| ua21a002 | ua21a | Preload variable: Gender of respondent | |
| ua21a003 | ua21a | Permutation variable: Which scenario was shown and asked out first? | |
| ua21a004 | ua21a | Permutation variable: Which scenario was shown and asked out second? | |
| ua21a005 | ua21a | Permutation variable: Which scenario was shown and asked out third? | |
| ua21a006 | ua21a | Permutation variable: Which item was shown first at ua21a049 - ua21a052? | |
| ua21a007 | ua21a | Permutation variable: Which item was shown second at ua21a049 - ua21a052? | |
| ua21a008 | ua21a | Permutation variable: Which item was shown third at ua21a049 - ua21a052? | |
| ua21a009 | ua21a | Permutation variable: Which item was shown fourth at ua21a049 - ua21a052? | |
| ua21a010 | ua21a | Permutation variable: Which item was shown first at ua21a053 – ua21a056? | |
| ua21a011 | ua21a | Permutation variable: Which item was shown second at ua21a053 – ua21a056? | |
| ua21a012 | ua21a | Permutation variable: Which item was shown third at ua21a053 – ua21a056? | |
| ua21a013 | ua21a | Permutation variable: Which item was shown fourth at ua21a053 – ua21a056? | |
| ua21a014 | ua21a | Permutation variable: Which item was shown first at bij ua21a070 - ua21a073? | |
| ua21a015 | ua21a | Permutation variable: Which item was shown second at ua21a070 - ua21a073? | |
| ua21a016 | ua21a | Permutation variable: Which item was shown third at ua21a070 - ua21a073? | |
| ua21a017 | ua21a | Permutation variable: Which item was shown fourth at ua21a070 - ua21a073? | |
| ua21a018 | ua21a | Mobile layout | |
| ua21a019 | ua21a | Was shown information about colon cancer in the cholesterol scenario | |
| ua21a020 | ua21a | [Skin cancer] What do you think the probability is that you will experience this side effect after the treatment? | |
| ua21a021 | ua21a | [Skin cancer] How likely is it that you will experience this side effect after your treatment? | |
| ua21a022 | ua21a | [Skin cancer] How frightening do you find the information about this side effect? | |
| ua21a023 | ua21a | [Skin cancer] How worrying do you find the information about this side effect? | |
| ua21a024 | ua21a | [Skin cancer] How grave do you find the information about this side effect? | |
| ua21a025 | ua21a | [Skin cancer] What do you think is the probability that you will experience this side effect after the treatment? Please enter a number between 0 and 100. | |
| ua21a026 | ua21a | [Skin cancer] The information about the side effect feels like it was written for me personally. | |
| ua21a027 | ua21a | [Skin cancer] The way the information about the side effect was provided is relevant to me. | |
| ua21a028 | ua21a | [Skin cancer] Based on the information you just read, how likely is it that you would choose this treatment? | |
| ua21a029 | ua21a | [Increased cholesterol] What do you think the probability is that you will experience this side effect after the treatment? | |
| ua21a030 | ua21a | [Increased cholesterol] How likely is it that you will experience this side effect after your treatment? | |
| ua21a031 | ua21a | [Increased cholesterol] How frightening do you find the information about this side effect? | |
| ua21a032 | ua21a | [Increased cholesterol] How worrying do you find the information about this side effect? | |
| ua21a033 | ua21a | [Increased cholesterol] How grave do you find the information about this side effect? | |
| ua21a034 | ua21a | [Increased cholesterol] What do you think is the probability that you will experience this side effect after the treatment? Please enter a number between 0 and 100. | |
| ua21a035 | ua21a | [Increased cholesterol] The information about the side effect feels like it was written for me personally. | |
| ua21a036 | ua21a | [Increased cholesterol] The way the information about the side effect was provided is relevant to me. | |
| ua21a037 | ua21a | [Increased cholesterol] Based on the information you just read, how likely is it that you would choose this treatment? | |
| ua21a038 | ua21a | [Colon cancer] What do you think the probability is that you will experience this side effect after the treatment? | |
| ua21a039 | ua21a | [Colon cancer] How likely is it that you will experience this side effect after your treatment? | |
| ua21a040 | ua21a | [Colon cancer] How frightening do you find the information about this side effect? | |
| ua21a041 | ua21a | [Colon cancer] How worrying do you find the information about this side effect? | |
| ua21a042 | ua21a | [Colon cancer] How grave do you find the information about this side effect? | |
| ua21a043 | ua21a | [Colon cancer] What do you think is the probability that you will experience this side effect after the treatment? Please enter a number between 0 and 100. | |
| ua21a044 | ua21a | [Colon cancer] The information about the side effect feels like it was written for me personally. | |
| ua21a045 | ua21a | [Colon cancer] The way the information about the side effect was provided is relevant to me. | |
| ua21a046 | ua21a | [Colon cancer] Based on the information you just read, how likely is it that you would choose this treatment? | |
| ua21a047 | ua21a | Imagine you were to receive information about the risks of side effects after a treatment. To what extent would you want to know your personal risk of side effects after a treatment? | |
| ua21a048 | ua21a | Suppose you were to receive information about your personal probability of experiencing a side effect after receiving treatment. Would you also want to know what your personal risk is compared to the average risk? | |
| ua21a049 | ua21a | How good are you at calculations using fractions? | |
| ua21a050 | ua21a | How good are you at calculations using percentages? | |
| ua21a051 | ua21a | Hoe well can you calculate a 15% tip? | |
| ua21a052 | ua21a | How well can you calculate the price of a T-shirt if it has a 25% discount? | |
| ua21a053 | ua21a | When you read the newspaper, how helpful do you find the tables and graphs used to illustrate articles? | |
| ua21a054 | ua21a | Imagine someone tells you about how likely it is that something will happen. Would you prefer them to use words (for example: “it happens rarely”) or numbers (for example: “The probability is 1%”)? | |
| ua21a055 | ua21a | Suppose you are listening to the weather forecast. Would you prefer to hear the predictions given in percentages (for example: “There is a 20% chance of rain today”) or in words (for example: “There is a small chance of rain today”)? | |
| ua21a056 | ua21a | How often do you find information in the form of numbers to be helpful? | |
| ua21a057 | ua21a | What does the following word mean? Orthodontics | |
| ua21a058 | ua21a | What does the following word mean? Reflux | |
| ua21a059 | ua21a | What does the following word mean? Chlamydia | |
| ua21a060 | ua21a | What does the following word mean? Plaque | |
| ua21a061 | ua21a | What does the following word mean? Obesity | |
| ua21a062 | ua21a | What does the following word mean? Biopsy | |
| ua21a063 | ua21a | What does the following word mean? Malaise | |
| ua21a064 | ua21a | What does the following word mean? Diaphragm | |
| ua21a065 | ua21a | What does the following word mean? Gelling agent | |
| ua21a066 | ua21a | What does the following word mean? Chiropractic | |
| ua21a067 | ua21a | What does the following word mean? Echography | |
| ua21a068 | ua21a | What does the following word mean? Flaking | |
| ua21a069 | ua21a | What does the following word mean? Ventricle | |
| ua21a070 | ua21a | Of all people who die of cancer, approximately what percentage die of colorectal, breast and prostate cancer combined? | |
| ua21a071 | ua21a | If there are 100 patients with disease X, how many more male patients are there compared to the number of female patients? | |
| ua21a072 | ua21a | Which medication leads to the largest decrease in the percentage of people who die compared to the placebo? | |
| ua21a073 | ua21a | Which treatment leads to the greatest decrease in the number of sick patients? | |
| ua21a074 | ua21a | Have you (or someone in your family) suffered from one of the following diseases or conditions in the past? Skin cancer | |
| ua21a075 | ua21a | Have you (or someone in your family) suffered from one of the following diseases or conditions in the past? High cholesterol | |
| ua21a076 | ua21a | Have you (or someone in your family) suffered from one of the following diseases or conditions in the past? Colon cancer | |
| ua21a077 | ua21a | Have you undergone any of the following treatments in the past? Operation to remove skin cancer or other type of cancer | |
| ua21a078 | ua21a | Have you undergone any of the following treatments in the past? Medication for high cholesterol | |
| ua21a079 | ua21a | Have you undergone any of the following treatments in the past? Chemotherapy for colon cancer or other type of cancer | |
| ua21a080 | ua21a | Have you experienced any of the listed side effects? Infection of the skin around the wound | |
| ua21a081 | ua21a | Have you experienced any of the listed side effects? Gastrointestinal complaints, such as nausea, vomiting or diarrhea | |
| ua21a082 | ua21a | Have you experienced any of the listed side effects? Neuropathy | |
| ua21a083 | ua21a | Was it difficult to answer the questions? | |
| ua21a084 | ua21a | Were the questions sufficiently clear? | |
| ua21a085 | ua21a | Did the questionnaire get you thinking about things? | |
| ua21a086 | ua21a | Was it an interesting subject? | |
| ua21a087 | ua21a | Did you enjoy answering the questions? | |
| ua21a088 | ua21a | Starting date questionnaire | |
| ua21a089 | ua21a | Starting time questionnaire | |
| ua21a090 | ua21a | End date questionnaire | |
| ua21a091 | ua21a | End time questionnaire | |
| ua21a092 | ua21a | Duration in seconds |